Support LineSupport GroupsSearch

Your network

We know that collaboration is the key to learning and developing expertise in pulmonary fibrosis. Learn more about how to make the most of your network.

The Association of Respiratory Nurse Specialists
The Association exists to champion respiratory nurse practice and influence policy.  They run an annual conference in the UK.  

British Lung Foundation

The British Lung Foundation (BLF) offers study days for multidisciplinary teams  around the UK.  These cover a broad range of lung related conditions, including idiopathic pulmonary fibrosis.

The Interstitial Lung Disease Interdisciplinary Network (ILD-IN)

The ILD Interdisciplinary Network (ILD-IN) aims to provide a supportive network for health professionals of all disciplines working in interstitial lung diseases. ILD-INs purpose is to provide support, promote ILD-speciality practice through education and professional development and to influence the policy of ILD care.

There is an annual ILD-IN training event in October every year which we support.  

The Royal College of General Practitioners

APF have partnered with the Royal College to develop an online training module to help improve the diagnosis of pulmonary fibrosis in patients.  This will be launched September 2020.  More details will be added to our website later in the year.

Royal College of Nursing

The Royal College represents nurses and nursing, promotes excellence in practice and shapes health policies by:

  • supporting nurses in advanced roles and those aspiring to become advanced nurse practitioners
  • liaising with colleagues in higher education institutions to promote courses which develop effective, safe practitioners
  • raising awareness of the value of the advanced nursing role
  • exploring new avenues for benchmarking advanced practice
  • developing policy and practice
  • awarding RCN Accreditation to University Advanced Practitioner programmes that meet the RCN-quality assessment process
  • RCN Credentialing Programme formally recognises advanced level practice among nurses.

Local support groups

Support groups for patients with pulmonary fibrosis and their carers sometimes run learning events aimed at patients and health care professionals, particularly GPs.  

By getting in touch with your local support group you can help support patient knowledge and improve the diagnosis and treatment from your local health care professionals.