Research Opportunity: Understanding people's views of early screening and treatment of pulmonary fibrosis

15
December 2022

Are you interested in using your lived experience and voice to help us shape the future pulmonary fibrosis research?

The POST-PF Study aims to explore the opinions of people who may be at increased risk of pulmonary fibrosis and healthcare professionals involved in the care of pulmonary fibrosis to help design an effective screening programme and early treatment.

The POST-PF Study is one of several studies currently recruiting participants in the UK.  You can search for all available trials using the European Pulmonary Fibrosis Federation (EU-IPFF) clinical trial finder or by searching on ClinicalTrials.gov.  

This study is not a clinical trial. If you are interested in taking part in a clinical trial, you must speak to your clinical team.    

What is the POST-PF Study?  

The POST-PF Study is a qualitative research project (this means there are no medications to take) and aims to understand people's views of screening and early treatment in pulmonary fibrosis to help develop an effective screening programme for pulmonary fibrosis.

Can I take part?

You may be able to participate if you:

  • have a diagnosis of idiopathic pulmonary fibrosis (IPF)
  • are the first-degree relative of a person diagnosed with idiopathic pulmonary fibrosis (IPF)
  • have participated in screening for lung cancer
  • are a healthcare professional working with people with pulmonary fibrosis

In all studies, there are lots of different reasons why you may or may not be able to take part.  These are known as inclusion and exclusion criteria. Only the study team will be able to fully determine whether you are able to take part in the study.

What is involved?

The study involves sharing your views in a one-to-one interview (approx. 45 minutes) with other participants via remote video call (Teams or Zoom). The discussion will be recorded and transcribed.

Where in the UK is this study taking place?

The study will be recruiting patients throughout the UK and the discussion will be held remotely via Teams or Zoom. Face-to-face interview will be available for those living in London.

If you are interested in taking part or would like more information about this study, please email postpfstudy@imperial.ac.uk

This post provides information about an opportunity to participate in research. More detailed information about the study can be found by following the links provided.  If you have any questions about the research study, please speak to your medical team and contact the researchers directly.  APF does not endorse or recommend any specific study.  All responsibility for the study remains with the sponsors and investigators.

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If you need information or advice on living with pulmonary fibrosis, we are here to help.