The results confirmed our worst expectations:
- 41% of pulmonary fibrosis patients had to wait more than a year to be diagnosed
- 37% of patients were misdiagnosed at least once
- The journey to diagnosis is an anxious and worrying time for patients.
In EU-IPFF’s view, it is unacceptable for pulmonary fibrosis patients to wait so long to be diagnosed, given their poor prognosis. People should be diagnosed and treated more quickly. We need a time-bound path to diagnosis and treatment for pulmonary fibrosis patients similar to that for cancer patients in most European countries.
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