search Donate

6b4eb7c3-bad5-4f98-8e3e-2158172cfe64 flex-box container between col-100 0

7fb6ea93-8328-4509-aeb7-5e8bb0eae0e1 flex-box col-100 0

7fa1da47-2c81-4043-8627-e9d196cc5500 col-100 0

Join us

1520de1e-85e1-4832-bbc1-1efd721813b8 flex-box container between col-100 0

0c84afa7-3fac-4dda-9d32-a0c727e22178 flex-box col-100 0

6c36f7d1-515e-43b6-b2e8-b9d859cd0687 col-100 0

As a young, energetic and ambitious charity, we support people affected by pulmonary fibrosis and invest in research to find a cure. Do you have the passion and skills we need? We’d love to hear from you: Please get in touch.

0582178b-f5d7-4e86-a79a-173a7a8af85e col-100 1

Action for Pulmonary Fibrosis is committed to equity, diversity and inclusion.

Pulmonary fibrosis affects people from all walks of life, and we believe our team should reflect the diverse communities we support. We warmly welcome applications from people of all backgrounds, regardless of age, disability, sex, gender identity, sexual orientation, race, ethnicity, religion or belief, marital or civil partnership status, pregnancy or maternity.

760848ab-2c6d-425f-af5e-933c015e78c1 col-100 2

5f7ca987-eebf-4a0e-bfde-86edb53d52d1 flex-box col-100 1

3770d733-c537-38f1-9e12-e107b88dd25a flex-box container between col-100 0

4600718b-34f9-fa7c-6b7a-aa8ad3d26852 flex-box col-100 0

56066afc-8597-ed36-21fd-b056f768d8db col-100 0

Trustee (Lived Experience of Pulmonary Fibrosis)

Role: Voluntary, with expenses paid | Location: Hybrid (Peterborough)

chevron_rightkeyboard_arrow_up

Action for Pulmonary Fibrosis (APF) Hybrid (UK-wide) | ~4 Board meetings per year + flexible participation options

Do you have personal experience of pulmonary fibrosis and want to use your voice to shape change?

Action for Pulmonary Fibrosis (APF) is the UK’s leading charity for people affected by pulmonary fibrosis. We are looking for a Trustee with lived experience to join our Board and help ensure the voices of patients, families and carers are at the heart of everything we do.

We recognise that living with pulmonary fibrosis can be challenging. We are committed to supporting Trustees in a way that works for them, including options to join meetings remotely where needed.

Why join APF?

Pulmonary fibrosis brings complex and often challenging experiences for individuals and those around them. At APF, we work to improve support, drive research, and influence policy and care so that people affected by pulmonary fibrosis are better supported at every stage of their journey.

As a Trustee, you will help ensure that lived experience shapes our decisions, priorities and culture, influencing how we design services, set direction and deliver meaningful change.

Who we’re looking for

We are particularly keen to hear from people who bring lived experience of pulmonary fibrosis, for example as a:

Person living with pulmonary fibrosis
Carer, family member or close supporter
Someone closely affected by the condition

You do not need previous Board experience. We are looking for people who can:

Share insight and perspective to inform strategic discussions
Reflect the needs, challenges and priorities of the PF community
Ask questions, contribute ideas and challenge constructively
Work collaboratively and respectfully with others

We would also welcome, but do not require, experience in areas such as:

HR, people management or organisational culture
Fundraising, supporter engagement or community development

The role

As a Trustee, you will:

Help shape APF’s strategy and long-term direction
Ensure strong governance, accountability and financial oversight
Bring lived experience insight into Board discussions and decisions
Help ensure services, research, information and campaigns reflect real needs
Highlight barriers, inequalities and opportunities for improvement
Contribute to subcommittees or projects where your perspective adds value

Time commitment

~4 Board meetings per year, with flexibility to attend remotely where needed
Preparation time for meetings
Occasional participation in subcommittees or advisory work, depending on your interests

We will work with you to ensure participation is manageable and accessible.

This is a voluntary, unpaid role. Reasonable expenses are reimbursed, including travel and caring costs where needed.

Our commitment to inclusion

We want our Board to reflect the diversity of the communities we serve. We actively encourage applications from people of all backgrounds and experiences, including those who may not have held a trustee role before.

To arrange an informal chat with the Chief Executive and the Chair of Trustees, please email recruitment@actionpf.org

Click here to apply.

For more information, read our job description pack.

1efc6205-38f6-2e48-92f9-b4abe6a494f7 flex-box col-100 1

90e02cf5-a3de-fe43-2f87-9b6df672158c col-100 0

Trustee (Healthcare Professional)

Location: Hybrid (Peterborough) | Role: Voluntary, with expenses paid

chevron_rightkeyboard_arrow_up

Action for Pulmonary Fibrosis (APF) Hybrid (UK-wide) | 4 Board meetings per year + occasional subcommittee involvement

Are you a healthcare professional who wants to use your expertise to create real, national impact?

Action for Pulmonary Fibrosis (APF) is the UK’s leading charity for people affected by pulmonary fibrosis. We are currently recruiting multiple Trustees from healthcare backgrounds to strengthen our Board and help shape the future of care, support and research.

Why join APF?

Pulmonary fibrosis presents complex challenges across diagnosis, care pathways and long-term management, with persistent variation in access and outcomes across the UK.

At APF, we work closely with patients, clinicians and partners to improve support, drive research, and influence national policy and care standards.

As a Trustee, you will help ensure our work is grounded in real-world healthcare experience, shaping decisions that improve services, strengthen clinical engagement, inform our research strategy, and deliver meaningful change for people affected by pulmonary fibrosis.

Who we’re looking for

We are particularly keen to hear from people who bring one or more of the following:

Clinical practice experience in pulmonary fibrosis / ILD care
Research expertise, including clinical research, trials, or academic work
Health information or education experience, helping patients understand and navigate care

We warmly welcome applications from across the healthcare system, including:

Doctors, nurses, allied health professionals such as physiotherapists, occupational therapists and dietitians, pharmacists, public health professionals and NHS leaders.