Help us to encourage better diagnosis of IPF

Symptom one, Increasingly breathlessSymptom two, Persistent, dry coughSymptom three, FatiguedSymptom four, Chest sounds like velcro

“I wish my GP had known more about my disease” is a comment made by patients with PF and IPF on a regular basis.

We know that pulmonary fibrosis can be hard to diagnose with many GP’s confusing the symptoms for Asthma and COPD.  

In fact our survey revealed that more than a third of people are misdiagnosed while almost half are not diagnosed within six months of visiting their GP with symptoms. This uncertainty can cause stress and anxiety for patients who don’t get the help they need.  

We want to change this. APF is working in partnership with the Royal College of GP’s (RCGP) to deliver a free training module available to all medical professionals to help spot the signs and symptoms of progressive lung fibrosis.

This e-learning course is particularly relevant with the challenges of seeing patients face-to-face during the pandemic.  

How can you help?

We’re calling on everyone affected by PF to deliver these eye-catching postcards to their GP surgery. The card encourages GP’s to access the free RCGP course so they can more easily recognise the early signs of the disease which includes Velcro-like crackling in the lungs.

…it could be IPF
You should hear the sound
If it sounds like
velcro being
pulled apart…

Please contact info@actionpf.org if you need further copies of the card delivered to you. A poster is also available to download.

We’d also love to hear from you if you’ve made contact with your GP!

With your help we’ll improve the shocking misdiagnosis of PF for patients now and in the future. Thank you.