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About Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis is a people-driven charity. We are here for you.

Who we are and what we do‍

APF is a national UK charity. We bring people together to drive change so more people affected by pulmonary fibrosis (or lung scarring) can live well for longer. People living with lung scarring, their loved ones and the professionals caring for them are at the heart of everything we do. 

We provide expert support, information, education, help a growing network of support groups and raise awareness of pulmonary fibrosis. We collaborate to drive change that improves health and care and we provide vital resources to researchers, bringing hope for new and future treatments for this devastating disease.

We estimate between 15,000 and 20,000 people a year are diagnosed with lung scarring. Despite pulmonary fibrosis being as deadly as some cancers, it takes too long for people to get diagnosed, treated and supported. This shortens and devastates lives and leaves people feeling alone, confused and frightened.

Together we will stop lives being lost to pulmonary fibrosis.

Our four goals
‍
Our four strategic goals drive everything we do.

1. Information and support
for all

More people affected by PF will be able to find support how and when they need it, to manage their health and wellbeing.

2. We are united to drive
change

We will grow and unite our communities to take action on our shared goals of improving research and care.

3. More awareness of the
signs of PF

More people at risk of PF will know the signs and symptoms so they can get help sooner.

4. Improving health,
treatment  and wellbeing

We are determined everyone living with PF in the UK will have access to effective, evidence-based treatment and care.

We are passionate about making a positive difference to the lives of people living with PF, their families and caregivers. Everything we do supports this, ensuring we make the biggest possible difference for people now and
in the future.

None of our work would be possible without our amazing staff team, combined with our volunteers and our wonderful fundraisers and donors.‍
Dr Michael Stubbins, Chair of Trustees
‍‍

Our vision, mission and values

‍We bring people together to drive change so more people affected by PF can live well for longer.

Our values drive everything we do

  • Compassionate: keeping people affected by PF at the heart of everything we do
  • Bold: campaigning for justice and equality for people affected by PF‍
  • Expert: bringing real life experience together with scientific expertise ‍
  • Collaborative: working with others to drive change

Our history

In 2013, our founding trustees – people affected by PF and clinicians –  made bold plans to start a charity and transform the lives of people affected by PF. From this, our impact and influence has grown to the thriving community APF is today.

Our people

We are a people-driven charity. Learn more about our staff and trustees.

As a people-driven organisation, it is vital to us that our community is a safe space for all, regardless of background, sexuality, gender, disability, or race.   We gain strength from the wide variety of backgrounds that people come with. We value your unique experience and want your voice to be heard.

Get in touch