Support LineSupport GroupsSearch

About Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis is a patient-driven charity. We are here for you.

Our four themes

1. Support

To advocate for patients and to provide support to improve their quality of life and to develop collaborative partnerships to help fund patient-focused support programmes

2. Research

To support research into improved outcomes and greater understanding of the disease and to champion research programmes

3. Education

To undertake targeted awareness raising of the disease, amongst the medical profession, decision-makers and the wider public

4. Campaigning

To proactively target parliamentarians, NHS and policy-makers and to represent patient interests with NICE and the NHS and to target symptom recognition in primary care for prompt diagnosis.

Who are we?

We are a growing community of patients, families, researchers and healthcare professionals striving to find a cure for pulmonary fibrosis so that everyone affected by the disease has a better future.

We support patients and families and raise awareness of pulmonary fibrosis through campaigning, fundraising and education. We also fund research to improve quality of life for people living with pulmonary fibrosis and to find a cure.

We are a patient-led charity and we try to ensure that everything we do addresses your priorities. None of our work would be possible our amazing supporters and fundraisers

Steve Jones, Chair of Trustees

Our vision, mission and values

APF’s vision is to find a cure for pulmonary fibrosis so that everyone affected by the disease has a better future.

We provide support to families, raise awareness, campaign and educate to improve access to the highest standard of care for everyone affected. We are committed to finding a cure through funding research.

Our values drive everything we do

•    Patient-led: We empower patients, who are at the heart of everything we do.

•    Caring and compassionate: We respect and understand the needs of patients and carers, and help them to get the support they need

•    Striving for excellence: We work with integrity and professionalism in all that we do

•    Open and approachable: We ensure people affected by pulmonary fibrosis feel able to turn to us for advice and support in their time of need

•    Ambitious: We will improve the lives of people affected by pulmonary fibrosis and bold in the ways we do this.

Our history

Action for Pulmonary Fibrosis (APF) was formed in 2013 by two leading Interstitial Lung Disease (ILD) doctors and a small and ambitious group of patients and carers. The result is a charity which puts patients and their families at the heart of everything it does.

This unique connection of APF to patients and families drives everything the charity has achieved and does.

Ten years ago, knowledge of the disease amongst many healthcare professionals was patchy. There were very few specialist doctors or nurses, who understood the disease patients had only limited access to pulmonary rehabilitation and there was little on-going research into causes or treatments.

There were no effective drug therapies and only a handful of specialist hospitals. There were also very few support groups around the country and little information, either printed or online, for families.

Our people

We are a patient-driven charity. Learn more about our staff and trustees.

Get in touch