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Recently diagnosed with Pulmonary Fibrosis

Everyone experiences a diagnosis of pulmonary fibrosis differently. However you are feeling, you are not alone, we have information and support to help.

Get support

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Support groups
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Information for you


Understanding PF

What is pulmonary fibrosis?
What is pulmonary fibrosis?
Stages of pulmonary fibrosis
Stages of pulmonary fibrosis
Types of pulmonary fibrosis
Types of pulmonary fibrosis
Does IPF run in the family?
Does IPF run in the family?
Is there a cure?
Is there a cure?
Life expectancy
Life expectancy
Treatments
Treatments
Pulmonary fibrosis and COPD
Pulmonary fibrosis and COPD
Pulmonary hypertension
Pulmonary hypertension
Is interstitial lung disease the same as pulmonary fibrosis?
Is interstitial lung disease the same as pulmonary fibrosis?
Glossary
Glossary

Early practical issues

Can I carry on working?
Can I carry on working?
Questions for your medical team
Questions for your medical team
Helping family and friends to understand
Helping family and friends to understand
For more information about life with pulmonary fibrosis and how to manage symptoms and emotions visit Living with PF

Personal Stories

Emily and her Dad John

Emily discusses her Dad John's diagnosis of pulmonary fibrosis, and how they support each other day to day...

Elaine on living with IPF and keeping fit

Elaine Ball talks about her life with idiopathic pulmonary fibrosis and how she stays active during the colder months...

Antony

Antony (pictured with his partner Allison) was diagnosed with idiopathic pulmonary fibrosis (IPF) in his 50s in 2015. He is a self-employed computer engineer, fixing people’s computers in their homes.

Charlie

In October 2018 Charlie was diagnosed with idiopathic pulmonary fibrosis. After the initial shock, he and his family have set about raising awareness and much needed funds for Action for Pulmonary Fibrosis.

Ron and Myles

Friends Myles Greensmith and Ron Fish are keen advocates of exercise and pulmonary rehabilitation. After meeting at the Papworth Support Group some five years ago, they quickly established they were both interested in playing golf to stay active.
See all stories