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Newly diagnosed with Pulmonary Fibrosis

Everyone experiences diagnosis of pulmonary fibrosis differently. However you are feeling, you are not alone, we have information and support to help.

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Can I carry on working?Can I carry on working?

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Helping family and friends to understand Helping family and friends to understand

Is there a cure?Is there a cure?

Questions for your medical team Questions for your medical team

What if my symptoms get worse?What if my symptoms get worse?

Will I get better?Will I get better?

Personal Stories

Tony and Sue

‍Many people care for loved ones with pulmonary fibrosis. Tony, in his fifties, gave up work and now cares for his wife Sue who has IPF. Sue is on anti-fibrotic drugs and currently being assessed for transplant. Tony reflects on his experiences.

Charlie

In October 2018 Charlie was diagnosed with idiopathic pulmonary fibrosis. After the initial shock, he and his family have set about raising awareness and much needed funds for Action for Pulmonary Fibrosis.

Ron and Myles

Friends Myles Greensmith and Ron Fish are keen advocates of exercise and pulmonary rehabilitation. After meeting at the Papworth Support Group some five years ago, they quickly established they were both interested in playing golf to stay active.

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