Newly diagnosed with Pulmonary Fibrosis

Ruby is a volunteer for APF and passionate about helping others. "Anything I can do to help anyone with PF or affected by it, comes from the core values that mum installed in me and wanting to have a legacy in mum"

Antony (pictured with his partner Allison) was diagnosed with IPF in his 50s in 2015. He is a self-employed computer engineer, fixing people’s computers in their homes.

‍Many people care for loved ones with pulmonary fibrosis. Tony, in his fifties, gave up work and now cares for his wife Sue who has IPF. Sue is on anti-fibrotic drugs and currently being assessed for transplant. Tony reflects on his experiences.

Catherine Traynor's mum was diagnosed with PF in April 2019, having previously been incorrectly diagnosed with sarcoidosis the previous year. Sadly, her condition deteriorated rapidly and she passed away just before Christmas the same year.

In October 2018 Charlie was diagnosed with idiopathic pulmonary fibrosis. After the initial shock, he and his family have set about raising awareness and much needed funds for Action for Pulmonary Fibrosis.

Friends Myles Greensmith and Ron Fish are keen advocates of exercise and pulmonary rehabilitation. After meeting at the Papworth Support Group some five years ago, they quickly established they were both interested in playing golf to stay active.

Living with IPF has affected Sylvia’s mental wellbeing, particularly during lockdown. In her own words, she discusses how the support of her family, getting outside and pulmonary rehab has been a turning point for her and how she makes every day coun