Making the most of your appointments
To get the most from your appointments, you may want to take someone with you. They can help ask questions, remember details of the conversation, and offer support. Having someone with you can also be helpful if you feel nervous about your appointments.
Some people find it helpful to take notes during appointments. You can use our PF journal appointment diary for this, or take a notebook and pen.
Remember that you're entitled to have enough time to take in the conversation and have your questions answered.
Potential questions for your medical team
These questions may help you better understand your diagnosis and the care available to you.
Before diagnosis
- What tests will I need?
- What will the tests involve?
- Will I have to stay in hospital?
- How long will it take to get the results?
After diagnosis
- Do you know the cause of my pulmonary fibrosis?
- Do you know how advanced my fibrosis is?
- What treatments can I have?
- Who will look after me?
- Will I get better?
- Is there a cure for pulmonary fibrosis?
- Could I have a lung transplant?
Coping with pulmonary fibrosis
- Where can I get more information about the disease?
- Is there any support available for me and my family?
- What can I do to help myself?
- Is there a patient support group nearby you could refer me to?
- Are there pulmonary rehabilitation classes you could refer me to?
- Is there a nurse who I can phone from home, if I am worried about anything?
- Palliative care and symptom support
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Our website and resources provide general information only. We cannot provide medical advice, treatment or prescriptions, nor can we assess/decide what services or clinicians you should be referred to. Support with these matters will need to be provided by your existing healthcare professional teams.
APF is not responsible for any errors or omissions or for any loss or damage suffered by users resulting from the information published on our website or in our resources.
Further information for carers:
