Making the most of your consultation
You may be a little nervous when talking to your medical team at the hospital. It is a good idea to take someone with you who can help and support you – a family member or friend.
You could go armed with a notebook and pen to keep notes of what is said. Most of all please remember that you are entitled to have your questions answered fully - and to be given time to take it all in and to leave appointments with as much information as possible.
Questions for your medical team
Before diagnosis
- What tests will I need?
- What will the tests involve?
- Will I have to stay in hospital?
- How long will it take to get the results?
After diagnosis
- Do you know the cause of my pulmonary fibrosis?
- Do you know how advanced my fibrosis is?
- What treatments can I have?
- Who will look after me?
- Will I get better?
- Is there a cure for pulmonary fibrosis?
- Could I have a lung transplant?
Coping with pulmonary fibrosis
- Where can I get more information about the disease?
- Is there any support available for me and my family?
- What can I do to help myself?
- Is there a patient support group nearby you could refer me to?
- Are there pulmonary rehabilitation classes you could refer me to?
- Is there a nurse who I can phone from home, if I am worried about anything?
- Palliative care and symptom support
Information provided by Action for Pulmonary Fibrosis (APF) is not a substitute for professional medical advice. It’s intended as general information only. APF is not responsible for any errors or omissions or for any loss or damage suffered by users resulting from the information published on actionpf.org.
Further information for carers:
