Living with Pulmonary Fibrosis

Tricia Kay, 74, has Hypersensitivity Pneumonitis, Tricia shares her story of the impact of the support line. "I feel I can 'let go' if there is anything I want to discuss which I would normally bottle up and keep from my family."

Dawn 51, is living with pulmonary fibrosis and has been supported by the APF support line. "You don’t meet many younger people like myself with PF and it’s rare to find someone who understands what you’re experiencing".

Antony (pictured with his partner Allison) was diagnosed with idiopathic pulmonary fibrosis (IPF) in his 50s in 2015. He is a self-employed computer engineer, fixing people’s computers in their homes.

‍Many people care for loved ones with pulmonary fibrosis. Tony, in his fifties, gave up work and now cares for his wife Sue who has IPF. Sue is on anti-fibrotic drugs and currently being assessed for transplant. Tony reflects on his experiences.

In October 2018 Charlie was diagnosed with idiopathic pulmonary fibrosis. After the initial shock, he and his family have set about raising awareness and much needed funds for Action for Pulmonary Fibrosis.

Friends Myles Greensmith and Ron Fish are keen advocates of exercise and pulmonary rehabilitation. After meeting at the Papworth Support Group some five years ago, they quickly established they were both interested in playing golf to stay active.