Living with Pulmonary Fibrosis

Six years ago, Una was diagnosed with idiopathic pulmonary fibrosis (IPF). The diagnosis was a huge shock, and it started them on a journey neither of them could ever have predicted.

Sofia was only 28 years old when she was diagnosed with pulmonary fibrosis, she shares her experiences...

Emily discusses her Dad John's diagnosis of pulmonary fibrosis, and how they support each other day to day...

Elaine Ball talks about her life with idiopathic pulmonary fibrosis and how she stays active during the colder months...

Clive and Sue met at Ashton under Lyne Fire Station in 1993 when Sue started work as a cleaner there. After Clive was diagnosed with PF in late 2009 he started the Tameside PF Support Group in 2018.

John, 63 years from Bournemouth, was diagnosed with IPF in April 2017. John talks about the impact of having a cough and how it affects his day to day life.

Pepe, 69yrs, from London was diagnosed with IPF in 2015. Pepe talks about the pulmonary fibrosis cough and ways of not letting the illness spoil daily life.

Dawn 51, is living with pulmonary fibrosis and has been supported by the APF support line. "You don’t meet many younger people like myself with PF and it’s rare to find someone who understands what you’re experiencing".

Tricia Kay, 74, has Hypersensitivity Pneumonitis, Tricia shares her story of the impact of the support line. "I feel I can 'let go' if there is anything I want to discuss which I would normally bottle up and keep from my family."

Antony (pictured with his partner Allison) was diagnosed with idiopathic pulmonary fibrosis (IPF) in his 50s in 2015. He is a self-employed computer engineer, fixing people’s computers in their homes.

‍Many people care for loved ones with pulmonary fibrosis. Tony, in his fifties, gave up work and now cares for his wife Sue who has IPF. Sue is on anti-fibrotic drugs and currently being assessed for transplant. Tony reflects on his experiences.

In October 2018 Charlie was diagnosed with idiopathic pulmonary fibrosis. After the initial shock, he and his family have set about raising awareness and much needed funds for Action for Pulmonary Fibrosis.

Friends Myles Greensmith and Ron Fish are keen advocates of exercise and pulmonary rehabilitation. After meeting at the Papworth Support Group some five years ago, they quickly established they were both interested in playing golf to stay active.