Living with Pulmonary Fibrosis

70,000 people in the UK are living with pulmonary fibrosis. We have the information, support and stories to help you and your loved ones to live well with pulmonary fibrosis.

Get support

Information for you

Personal Stories

Tom and Una’s story: speaking out for others

Six years ago, Una was diagnosed with idiopathic pulmonary fibrosis (IPF). The diagnosis was a huge shock, and it started them on a journey neither of them could ever have predicted.

Sofia

Sofia was only 28 years old when she was diagnosed with pulmonary fibrosis, she shares her experiences...

Emily and her Dad John

Emily discusses her Dad John's diagnosis of pulmonary fibrosis, and how they support each other day to day...

Elaine on living with IPF and keeping fit

Elaine Ball talks about her life with idiopathic pulmonary fibrosis and how she stays active during the colder months...

Clive and Sue and the importance of talking

Clive and Sue met at Ashton under Lyne Fire Station in 1993 when Sue started work as a cleaner there. After Clive was diagnosed with PF in late 2009 he started the Tameside PF Support Group in 2018.

John and the impact of the pulmonary fibrosis cough

John, 63 years from Bournemouth, was diagnosed with IPF in April 2017. John talks about the impact of having a cough and how it affects his day to day life.

Pepe Gonzalez and managing the pulmonary fibrosis cough

Pepe, 69yrs, from London was diagnosed with IPF in 2015. Pepe talks about the pulmonary fibrosis cough and ways of not letting the illness spoil daily life.

Dawn: pulmonary fibrosis and getting support

Dawn 51, is living with pulmonary fibrosis and has been supported by the APF support line. "You don’t meet many younger people like myself with PF and it’s rare to find someone who understands what you’re experiencing".

Antony

Antony (pictured with his partner Allison) was diagnosed with idiopathic pulmonary fibrosis (IPF) in his 50s in 2015. He is a self-employed computer engineer, fixing people’s computers in their homes.

Tony and Sue

‍Many people care for loved ones with pulmonary fibrosis. Tony, in his fifties, gave up work and now cares for his wife Sue who has IPF. Sue is on anti-fibrotic drugs and currently being assessed for transplant. Tony reflects on his experiences.

Charlie

In October 2018 Charlie was diagnosed with idiopathic pulmonary fibrosis. After the initial shock, he and his family have set about raising awareness and much needed funds for Action for Pulmonary Fibrosis.

Ron and Myles

Friends Myles Greensmith and Ron Fish are keen advocates of exercise and pulmonary rehabilitation. After meeting at the Papworth Support Group some five years ago, they quickly established they were both interested in playing golf to stay active.