APF is a people-driven organisation, it is vital to us that our community is a safe space for all, regardless of background, sexuality, gender, disability, or race. We gain strength from the wide variety of backgrounds that people come with. We value your unique experience and want your voice to be heard.

Daniel Saxton
Daniel has a background spanning Charity Leadership, NHS and Private Healthcare Business Development, Corporate Governance, and Strategic Marketing and Communications. Daniel is responsible for leading APF in its mission while fostering a supportive, collaborative environment for our team and partners. His goal is to ensure that our charity is not only well-governed and financially sustainable but also highly effective in delivering impactful services to those in need.
Daniel is passionate about making a meaningful difference through charitable work. He works closely with our dedicated staff, volunteers, donors, and stakeholders to develop innovative solutions and support systems that truly meet the needs of those we serve.
Daniel’s approach is focused on collaboration, innovation, and long-term sustainability. By working together, he believes we can continue to drive progressive change, create efficiencies, and ultimately enhance the support available to those living with pulmonary fibrosis.

Bradley Price

Jonathan Dawson
Jonathan Dawson brings over 20 years of experience in the charity sector to his role as Director of Finance and Operations.
With a deep passion for using resources to create meaningful impact, Jonathan has dedicated his career to ensuring that every dollar is maximized to support the causes he cares about.
Outside of work, he enjoys the thrill and challenge of mountain biking, and he loves to travel and see new places, finding inspiration and balance in the great outdoors.

Lisa Trivett
Bringing over 20 years' experience in the sector. Specialising in health and NHS charities, and working with both national and local organisations, she is passionate about fundraising and how it directly impacts the lives of patients by providing necessary resources for research, information, and support services.
Lisa is keen to build on the incredible work that is being done at APF and to collaborate with the dedicated community of volunteers, donors, and healthcare professionals, to ensure people affected by pulmonary fibrosis can live well for longer.

Dr Michael Stubbins
Mike lost his Mum, Anne, to idiopathic pulmonary fibrosis (IPF) in late 2017, after a brave 10 year battle with both the original diagnosis and subsequently the disease itself. Mike is honoured to serve as an APF trustee in memory of Anne and is driven to utilise the skills and experience he has gained throughout his career to help to increase APF’s links with the Pharma/Biotech/healthcare industry and to work towards the acceleration of PF research and education more broadly.

Dr Helen Parfrey
She also has an interest in the genetics of familial and idiopathic pulmonary fibrosis.
Dr Parfrey is a strong supporter of patient advocacy having established the pulmonary fibrosis patient support group at Papworth Hospital. She was a founding trustee of APF.

Matt Kemp
Matt was diagnosed with PF after a sharp-eyed consultant identified it during treatment for, what was believed to be, Pneumonia. In 2019 Matt received a double lung transplant at Harefield Hospital and returned to work just 9 months later.
Matt feels honored to be a trustee for APF and aims to use his skills to help the charity develop to further support those living with pulmonary fibrosis.

Emma Goodes
She brings over 30 years of experience in finance, including a decade within the charity sector. Emma currently serves as Director of Finance & IT at a drug and alcohol rehabilitation charity, where she plays a key role in strengthening governance and optimising operational models. Her work ensures the organisation remains effective and efficient, supported by are resilient IT infrastructure.
Emma is passionate about using financial and technological strategies to improve outcomes for people who rely on the charity’s services. By driving continuous improvement and fostering collaboration across teams, she helps ensure that resources are used effectively to make a real difference on the frontline.
Outside of work, Emma enjoys spending time with her children, walking her two dogs, photography, and reading.

Matthew Suddart
Matthew was elected as a Local Councillor at the age of 18, inspired to try and make his community a better place for all. He brings a knowledge of local and national government that will be valuable for the charity.
Matthew lost his Grandad Des to idiopathic pulmonary fibrosis at the age of 18. Des, a former steelworker was an inspiration to Matthew and taught him so many life lessons and values that will remain for the rest of his life. Matthew is honoured to serve as a trustee at APF in his Grandads memory.
In particular, Matthew wants APF to help support young carers in the future and is passionate that patients and families are better supported when receiving the news of a pulmonary fibrosis diagnosis.
Matthew is a keen runner and ran his first ever marathon for Action for Pulmonary Fibrosis in 2017.

Stephen Morgan-Hyland
He is a Director of a leading planning and economics consultancy in Manchester, having previously been Commercial Planning Director at an internationally renowned property agency. He is involved with some of the largest commercial development projects in the UK.
Stephen lost his dad, Tony, to idiopathic pulmonary fibrosis in 2017. Tony had suffered with the condition for five years, but he was not diagnosed until it was too late for any long-term treatment.
Stephen is honoured to serve at a trustee for Action for Pulmonary Fibrosis in his dad’s memory. He is driven to raise awareness of pulmonary fibrosis in the interests of both ensuring that clinical advances continue to be achieved and that early diagnosis is made in as many cases as is possible.
Stephen is a keen runner and often competes in races flying the Action for Pulmonary Fibrosis flag.

Dr Simon Hart
His research interests include inflammation and the immune system in pulmonary fibrosis and sarcoidosis.

Wendy Dickinson
Wendy was a newspaper and radio journalist for many years before moving to the BBC as a drama publicist. She then worked for a leading UK family support charity as Communications Manager. She has published several factual books, including a biography of her late father. Based on her personal experience, Wendy believes that whilst the patient should always be at the heart of everything APF does, support for the whole family is also hugely important. She is passionate about investment in research and enjoys visiting support groups to learn about the real experiences of patients and families.

Professor Nick Wareham
He studied Medicine at St Thomas’ Hospital Medical School and Epidemiology at the London School of Hygiene and Tropical Medicine and Cambridge University, England.
the In 1992-3 he was a Harkness Fellow at the Harvard School of Public Health. After research fellowships at the University of Cambridge, he took up the Directorship of the MRC Epidemiology Unit when it was founded in 2003.
He is principal investigator of the EPIC-Norfolk study, the EPIC-InterAct project, the Fenland cohort and the ADDITION trial.
His main research interests are in understanding the aetiology of type 2 diabetes, particularly in generating understanding about the interplay between genetic, developmental and behavioural risk factors. He also researches strategies for the early detection and prevention of diabetes, including individual and societal level interventions.
He is the Director of the UKCRC Centre for Diet and Activity Research (CEDAR) and the NIHR Global Health Group on Diet and Activity Research (GDAR).

Andrew Wilson
He became a licensed lay minister in the Church of England, specialising in community ministry. He helped to establish a charity to house destitute asylum seekers as its first chair. Since then he has become an experienced charity trustee and chair.
All the charities he has volunteered with have supported people who are disadvantaged by their situation, whether difficulties with asylum claims, extreme isolation or more generally those on the margins of society.
Most recently, he has just retired as chair of FareShare Midlands, and is about to retire from another small charity board.
In his spare time, he enjoys music. He used to be a choral singer, but PF has rather put paid to that, so he’s now concentrating on his cello and exploring some orchestral and chamber repertoire. With Lynda, his wife, he enjoys travelling, food and wine, and can still manage walks up hills, if rather slower than he used to be!

Elizabeth Bray
Over the last few years, the magnificent support from fundraisers across the UK has enabled APF to grow in to a strong and effective charity and Elizabeth looks forward to continuing to support its development.

Dr Richard Allen
He completed a Mathematics and Statistics BSc at the University of York and Medical Statistics MSc at the University of Leicester. He is a work package lead on the DEMISTIFI consortium investigating the genetics of multi-organ fibrosis and in July will take a lecturer position at the University of Leicester and continue his research into the genetics of progressive pulmonary fibrosis.
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Suzanne Barrie
She loves her job and all the challenges it brings and has a strong passion for continued development and improvement of patient care. This is partly what encouraged her to join APF as a member of the Research Review Panel and OneVoicePanel, to help support and try to improve the patients journey.
Suzanne’s dad sadly passed away in November 2023 from IPF and this highlighted to Suzanne the need for more awareness and support for this condition.
Outside of work, Suzanne is married, with 3 young boys. She enjoys keeping busy, spending time with family and friends, travelling and training their new golden retriever puppy. She is actively involved in School and Playgroup committees in her local community and if the puppy training goes well, is hoping for her to become involved as a volunteer Therapet for Charity.

Susan Hall
I live in Cambridge and am married with four children. I am a fierce advocate of patient support groups most especially for patients like myself living with serious disease and high symptom burden. Having joined my local PF support group a few years after diagnosis, I progressed to Deputy Chair and am now Chair of the Papworth Hospital Pulmonary Fibrosis Support Group.
In addition, I am a Registered Nurse and am fortunate enough to have been able to continue in clinical nursing following shielding through the pandemic, working in the Transplant Unit at Cambridge University Hospital.

Jeremy Dearling
Jeremy has experience at all stages of the research cycle for applicants, funders and as a team member. He has a passion for sharing his knowledge and experience of involvement with researchers, and people new to lay review, and find this very rewarding. He was motivated to get involved with the work of Action for Pulmonary Fibrosis, after a dear friend was diagnosed with the condition. Jeremy looks forward with great enthusiasm to contributing to the work APF does to support PF research.

Professor Ling-Pei Ho
Her research programme focuses on the interface between immune mechanisms of lung injury and dysrepair (fibrosis) and development of new medicines. She set up the Oxford Sarcoidosis Clinical Service, and currently leads the clinical service. She is also Chair of the NIHR Respiratory Translational Research Collaboration network, current member of a NHSE Policy Working Group on refractory Sarcoidosis, advisory panel for ASPIRE (a NIHR UK Consortium for Acute Respiratory Infection Diagnosis and Management) and BIOREME (UK wide Biophysical Models in Respiratory Medicine). She has an H index of 42 and published more than 90 original papers.

Melanie Felton
For several years Melanie has enjoyed sitting on a Respiratory Lay Advisory Group, reviewing research projects for funding approval from a patient perspective.
textbooksShe retired in October 2023 after spending 20 years running a medical legal practice for a plastic surgeon, reviewing medical papers for research and articles for surgical text books.
Prior to this, Melanie worked as a general science lecturer at a College of Further Education in Lancashire, teaching microbiology and food science to all students and all levels of food hygiene to the general public and students on behalf of the local Environmental Health Department to both students and general public involved in food. Her work also included working in local prisons, giving inmates the opportunity to gain recognised certification to help get a job on release.

Professor Stefan Marciniak
I studied medicine at the University of Cambridge as a member of the Cambridge MB/PhD programme. After junior medical posts in London,Cambridge, and Edinburgh, I moved to New York as a cell biology post-doc at NYU for three years. On returning to the UK in 2005, I completed my training in respiratory medicine and in 2008 became an honorary respiratory consultant in Cambridge, while establishing a research group in the Cambridge Institute for Medical Research (CIMR) to study lung diseases caused by protein misfolding. This is when I established the Cambridge Pneumothorax Clinic to improve care and facilitate research of disorders associated with pneumothorax.
Other roles:
- National lead for familial pneumothorax for the 100,000 Genomes Project
- Lead for the NHS Rare Disease Collaborative Network (RDCN) in familial pneumothorax
- Fellow of St Catharine’s College, Cambridge

Professor Ann Millar
Special interests in mechanisms of lung injury and repair related to clinical practice and expertise in interstitial lung disease.
Qualified in Liverpool and trained in General and Respiratory medicine in Liverpool and London.

Professor Chris Scotton
Chris studied Natural Sciences in Cambridge before embarking on a PhD at Cancer Research UK, followed by a Marie Curie fellowship in Milan - all focusing on tumour immunology.
On returning to the UK in 2004, Chris took a segue into lung research working with Professor Rachel Chambers and the late Professor Geoff Laurent at UCL Respiratory, investigating interstitial lung diseases, and idiopathic pulmonary fibrosis (IPF) in particular.
Like many people, Chris had never before heard of IPF, but rapidly came to realise the true value of working to understand this incurable disease. His research at UCL focused on innate immunity, coagulation and cellular/molecular biology; this was supported by career development fellowships from first the British Lung Foundation and subsequently the MRC.
Chris moved from his role as a Principal Research Fellow at UCL to take up a Senior Lectureship in Exeter in 2014. Chris is an Associate Professor in Respiratory Biomedicine.
In his spare time, Chris was also the Chairperson of the British Association for Lung Research from 2017 - 2021, has sat on the science & research committees of the British Lung Foundation and the British Thoracic Society, and is an Associate Editor of Thorax.

Albert (Al) Hinde
Al initially started his career as a research engineer in Aero Fuel and Hydraulic Systems. He later changed career pathways and moved into management and supervisory training in production engineering environments. Later Al progressed into health and safety, and spent the remaining 30 years of his career in various safety management and training roles. Throughout Al's career he developed many safety campaigns and training programmes designed to change attitudes of those at risk from the hazards they encounter. He is the co-author of “The Health and Safety Handbook for Voluntary and Community Organisations”
Al firmly believes that the most successful route to finding solutions to better treatment for pulmonary fibrosis and ultimately a cure, will be when “the people endeavouring to solve the problem, work with those who are affected by the disease”.
Al's main hobby is gardening, which he still manages to enjoy with help from loved ones.

Professor Gisli Jenkins
His research focuses on the mechanisms by which injury leads to scarring in the lung. Lung scarring is the central process leading to disability and death in people with idiopathic pulmonary fibrosis. It also occurs in diseases such as chronic asthma where it promotes airway remodelling and impaired lung function.
Professor Jenkins’ research work is funded by the National Institute of Health Research and organisations such as the Wellcome Trust, the Medical Research Council, charities and pharmaceutical companies.
He is leading the UK’s first James Lind Alliance Research Priority Setting Partnership for Pulmonary Fibrosis starting 2020. He was a founding trustee of the charity.