Personal stories

Everybody’s experience of pulmonary fibrosis is different. Read the stories of people's challenges and triumphs and how they manage their symptoms to have the best possible quality of life.

Antony

Antony (pictured with his partner Allison) was diagnosed with IPF in his 50s in 2015. He is a self-employed computer engineer, fixing people’s computers in their homes.

Tony and Sue

‍Many people care for loved ones with pulmonary fibrosis. Tony, in his fifties, gave up work and now cares for his wife Sue who has IPF. Sue is on anti-fibrotic drugs and currently being assessed for transplant. Tony reflects on his experiences.

Catherine

Catherine Traynor's mum was diagnosed with PF in April 2019, having previously been incorrectly diagnosed with sarcoidosis the previous year. Sadly, her condition deteriorated rapidly and she passed away just before Christmas the same year.

Charlie

In October 2018 Charlie was diagnosed with idiopathic pulmonary fibrosis. After the initial shock, he and his family have set about raising awareness and much needed funds for Action for Pulmonary Fibrosis.

Ron and Myles

Friends Myles Greensmith and Ron Fish are keen advocates of exercise and pulmonary rehabilitation. After meeting at the Papworth Support Group some five years ago, they quickly established they were both interested in playing golf to stay active.