You spoke, we listened. Together we demand change. Last year over 1,000 people affected by PF responded to our survey. The feedback, shared in our 'I wish it was Cancer' report, clearly showed that urgent action is needed.
- We're taking a stand to make sure that everyone with PF in the UK gets faster diagnosis, better access to treatment, and the support they deserve, no matter where they live.
- We're taking action to overcome the challenges of delayed diagnosis, poor communication, and barriers to essential services.
- We're reshaping ILD services to meet the true needs of those impacted by PF.
Here you'll find updates on how we're putting the 'Action' in 'APF', and how you can join us to drive positive change.
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Driving positive change for those affected by PF
Follow our progress
Be a part of transforming ILD services
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Get in touch at policy@actionpf.org