Webinars

This webinar is an introduction to managing fatigue. Our panel of experts talk about the link between pulmonary fibrosis and fatigue, what pacing is and how to do it, as well as management techniques – easy things that you can implement to help you manage your fatigue and live well with pulmonary fibrosis. You can find the summary sheet for this webinar here.

Our panel of experts answer your questions about the practicalities of travelling with PF. APF's specialist nurse Jo Dallas is joined by Jaymie, Alicia, George, Angie and Philip who all have lived experience of either travelling with PF themselves or arranging travel for someone with PF. You can read our additional information about train travel, travelling alone and oxygen here. Once you've watched the webinar, we'd love to hear what you think.

Our panel of experts answer your questions about the practicalities of using oxygen. As well as our specialist nurse, and a representative from the fire service, hear from Lesley who lives with PF and Kirstie and David who are care givers for loved ones using oxygen. You can read the additional information about oxygen use and driving, cooking and travelling here.

Did you know palliative care can help people with pulmonary fibrosis (PF) live well at any point in their diagnosis? Learn more from The Hospice of St Francis and Barry Freed, who is living with pulmonary fibrosis.

We partnered with the Royal Brompton and Harefield hospitals for this webinar on antifibrotics and immunomodulators. Learn about living well while taking these medications, and hear from Malcolm Dawson, who lives with PF, about his experience with nintedanib.

Mike Bray APF research fellow, Dr Richard Allen, who is based at the University of Leicester, has led the largest genetic study of idiopathic pulmonary fibrosis to date and helped identify changes in DNA that can increase the risk of IPF.

This session is packed full of living well information. Learn about medications, oxygen, exercise and diet from experts. And don't miss the personal accounts of living with pulmonary fibrosis.

Listen to a team of experts discussing how they make a diagnosis of pulmonary fibrosis.

In this session, experts discuss why blood tests, genetics, breathing tests and CT scans are used, and what these tests tell us about pulmonary fibrosis. And we hear from people living with pulmonary fibrosis about their experiences.

Learn more about what’s happening in Scotland for pulmonary fibrosis. Hear from leading healthcare professionals and get an insight into the thoughts of patients and carers.

Helping you to understand pulmonary fibrosis better. With lung specialist Dr Simon Hart.

If you live with pulmonary fibrosis, you’ll know that some days can be worse than others. How can you develop strategies to cope? Counselling Psychologist Dr Kyriacou and Sylvia Gibbin gave some tried and tested tips.

Fellow carers Dee and Maxine shared personal experiences and answered questions from the live audience.

Pulmonary rehabilitation can help improve ones ability to function and quality of life. Hear from those who’ve tried it: Ron and Lorna answered  questions live.

Want to learn more about Oxygen Therapy? In this session Ron Flewett, who is living with IPF, and Respiratory Nurse, Debbie Roots will bust the myths, present the facts and answer your questions live.