Our pulmonary fibrosis webinars include in depth talks, patient stories, and insight from medical consultants.
Don’t miss our upcoming webinar
Palliative Care for Pulmonary Fibrosis: Myths and Truths
.png)
Did you know palliative care can help people with pulmonary fibrosis (PF) live well at any point in their diagnosis?
Learn more at our free webinar 'Palliative Care for Pulmonary Fibrosis: Myths and Truths' in collaboration with The Hospice of St Francis.
- Hear about Barry's experience of palliative care as someone living with PF.
- Learn what palliative care is, what it involves and where it happens.
- Find out how palliative care can benefit you and your loved ones.
- Have your questions answered.
Tuesday 15th October
11am - 12pm
We hope you can join us!
If you'd like to join but you can't make it on the day, still book your place using the link below. We'll email you the recording to watch back as soon as it's available. The recording will also be available on this web page.
In-depth talks
.jpg)
Medications for PF
We partnered with the Royal Brompton and Harefield hospitals for this webinar on antifibrotics and immunomodulators. Learn about living well while taking these medications, and hear from Malcolm Dawson, who lives with PF, about his experience with nintedanib.
Does DNA hold the key to understanding IPF?
Mike Bray APF research fellow, Dr Richard Allen, who is based at the University of Leicester, has led the largest genetic study of idiopathic pulmonary fibrosis to date and helped identify changes in DNA that can increase the risk of IPF.
Talking PF 2023
Talking PF 2023 Session 1: Why do we test?
In this session, experts discuss why blood tests, genetics, breathing tests and CT scans are used, and what these tests tell us about pulmonary fibrosis. And we hear from people living with pulmonary fibrosis about their experiences.
Talking PF 2023 Session 2: Different types of ILD and how they are diagnosed
Listen to a team of experts discussing how they make a diagnosis of pulmonary fibrosis.
Talking PF 2023 Session 3: Living well with pulmonary fibrosis
This session is packed full of living well information. Learn about medications, oxygen, exercise and diet from experts. And don't miss the personal accounts of living with pulmonary fibrosis.
Scotland patient information day
Spotlight on Scotland
Learn more about what’s happening in Scotland for pulmonary fibrosis. Hear from leading healthcare professionals and get an insight into the thoughts of patients and carers.
Talking PF –
Series of mini talks and Q&As about lungs, life and keeping strong
1. How did I get PF?
Helping you to understand pulmonary fibrosis better. With lung specialist Dr Simon Hart.
2. Surviving or thriving – how to live well with pulmonary fibrosis
If you live with pulmonary fibrosis, you’ll know that some days can be worse than others. How can you develop strategies to cope? Counselling Psychologist Dr Kyriacou and Sylvia Gibbin gave some tried and tested tips.
3. Caring for loved ones with pulmonary fibrosis
Fellow carers Dee and Maxine shared personal experiences and answered questions from the live audience.
4. Could pulmonary rehab help you live better with pulmonary fibrosis?
Pulmonary rehabilitation can help improve ones ability to function and quality of life. Hear from those who’ve tried it: Ron and Lorna answered questions live.
5. Oxygen therapy
Want to learn more about Oxygen Therapy? In this session Ron Flewett, who is living with IPF, and Respiratory Nurse, Debbie Roots will bust the myths, present the facts and answer your questions live.
The ‘Talking PF’ series was a collaboration between Action for Pulmonary Fibrosis and Boehringer Ingelheim Ltd. Boehringer Ingelheim Ltd provided funding and support, with organising and project management in line with the ABPI Code of Practice.