Our pulmonary fibrosis webinars include in depth talks, patient stories, and insight from medical consultants.
Royal Brompton and Harefield Hospital: Virtual Patient Day
Different forms of pulmonary fibrosis and how they are diagnosed
Session includes: A general approach to ILD diagnosis; Our approach to care – an insight into the multidisciplinary team discussion
Treatment for pulmonary fibrosis
Session includes: Antifibrotic therapy; Immunosuppression for ILD; Rare cystic lung disease; Advanced therapies: ECMO and lung transplantation; Q&As.
Quality of life and pulmonary fibrosis
In this session, our experts discuss quality of life and interstitial lung disease.
The future and research of interstitial lung disease
Session includes: Royal Brompton Hospital research strategy; Home monitoring and PROMS; What does CT tell us and why do we do it; The role of genetics in diagnosis and management of ILD; Emerging clinical trials and promising approaches; Q&As.
In-depth talks
Clearing the air about cough
Professor Surinder Birring, Liz Robertson and Steve Jones discuss cough severity in pulmonary fibrosis, mechanisms of cough, possible treatments and future trials.
Does DNA hold the key to understanding IPF?
Mike Bray APF research fellow, Dr Richard Allen, who is based at the University of Leicester, has led the largest genetic study of idiopathic pulmonary fibrosis to date and helped identify changes in DNA that can increase the risk of IPF.
Talking PF –
Series of mini talks and Q&As about lungs, life and keeping strong
1. How did I get PF?
Helping you to understand pulmonary fibrosis better. With lung specialist Dr Simon Hart
2. Surviving or thriving – how to live well with pulmonary fibrosis
If you live with pulmonary fibrosis, you’ll know that some days can be worse than others. How can you develop strategies to cope? Counselling Psychologist Dr Kyriacou and Sylvia Gibbin gave some tried and tested tips.
3. Caring for loved ones with pulmonary fibrosis
Fellow carers Dee and Maxine shared personal experiences and answered questions from the live audience.
4. Could pulmonary rehab help you live better with pulmonary fibrosis?
Pulmonary rehabilitation can help improve ones ability to function and quality of life. Hear from those who’ve tried it: Ron and Lorna answered questions live.
5. Oxygen therapy
Want to learn more about Oxygen Therapy? In this session Ron Flewett, who is living with IPF, and Respiratory Nurse, Debbie Roots will bust the myths, present the facts and answer your questions live.
The ‘Talking PF’ series was a collaboration between Action for Pulmonary Fibrosis and Boehringer Ingelheim Ltd. Boehringer Ingelheim Ltd provided funding and support, with organising and project management in line with the ABPI Code of Practice.