Carers, family members and friends

Across the country, thousands of carers look after loved ones with pulmonary fibrosis. Never be afraid to ask for help. We are here to support you to look after yourself, so that you can look after others.

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Personal Stories

Sofia

Sofia was only 28 years old when she was diagnosed with pulmonary fibrosis, she shares her experiences...

Clive and Sue and the importance of talking

Clive and Sue met at Ashton under Lyne Fire Station in 1993 when Sue started work as a cleaner there. After Clive was diagnosed with PF in late 2009 he started the Tameside PF Support Group in 2018.

Sukh Kaur remembers her Dad Malvinder

Sukh's dad was diagnosed with IPF in June 2017, aged 63, just days after her uncle passed away with the same illness. Sukh shares her story of her dad who was"an amazing pillar of strength".

Dee: being a carer and getting support for you

Dee and Roger Bryan set up the West Kent PF, Dee, as a carer herself, also started a carer’s group last year in March 2019.

Tony and Sue

‍Many people care for loved ones with pulmonary fibrosis. Tony, in his fifties, gave up work and now cares for his wife Sue who has IPF. Sue is on anti-fibrotic drugs and currently being assessed for transplant. Tony reflects on his experiences.

Charlie

In October 2018 Charlie was diagnosed with idiopathic pulmonary fibrosis. After the initial shock, he and his family have set about raising awareness and much needed funds for Action for Pulmonary Fibrosis.

Ron and Myles

Friends Myles Greensmith and Ron Fish are keen advocates of exercise and pulmonary rehabilitation. After meeting at the Papworth Support Group some five years ago, they quickly established they were both interested in playing golf to stay active.