Search

Search

Information & Support
keyboard_arrow_down
Get Involved
keyboard_arrow_down
Healthcare Professionals
Research
keyboard_arrow_down
About Us
keyboard_arrow_down

search Donate

Transforming ILD Services

Share Your Experience and Create Change

Share your lived experience - Recruitment Closed

Use your lungs to improve PF care for everyone.

The Lived Experience Panel puts the voice of those affected by PF at the heart of everything OneVoiceILD will do. Share your experience and help drive the future of PF care.

We welcome applications from all walks of life and forms of experience. The role description for members of our lived experience panel can be found in the document linked below.

Apply for the Lived Experience Panel

Man gesticulating to doctor

If you have any questions about the lived experience panel, the steering group, or any further information, please do not hesitate to get in touch at involvement@actionpf.org.

If you would like to hear about upcoming opportunities to engage with APF's activities and have your voice heard, register for our involvement newsletter by emailing involvement@actionpf.org.

Frequently asked questions

What is a lived experience panel?

chevron_rightkeyboard_arrow_up

This lived experience panel provides insight and nuance to the challenges faced in seeking ILD care. The input of the Lived Experience Panel will shape and inform the work of the OneVoiceILD steering group.

What would be expected from me?

chevron_rightkeyboard_arrow_up

As part of the lived experience panel, we would expect you to provide honest, considered, and timely input to questions and discussion points put to the panel.

No travel will be required for you to take part, all aspects of the lived experience panel will take place remotely.

Do I have to have ILD to be involved?

chevron_rightkeyboard_arrow_up

No, you do not have to have ILD to become involved in our lived experience panel. If you have ever be diagnosed with, cared for or known a person diagnosed with PF, we want to hear about your experiences. We would like to receive input from as many points of view as possible.

How big of a commitment is this?

chevron_rightkeyboard_arrow_up

Participation in the lived experience panel is not a large time commitment, and we want to make it as easy as possible for relevant persons to be involved. You will likely have to dedicated around 4hours of your time (total) every 6 months. This will include taking part in surveys and virtual discussions, plus any follow-up.

You can change your mind and leave the group, but please let us know if you decide to.

Will I receive emotional support while taking part?

chevron_rightkeyboard_arrow_up

This panel is not intended as a source of peer support, but we would encourage anyone who needs it to get in touch with the APF Support Line.

Please call us on 01223 785725 Monday to Friday between 9am and 5pm.

Alternatively, you can email us on supportline@actionpf.org

Tab ID:270