Share Your Experience and Create Change

Share your lived experience - Now Recruiting

Use your lungs to improve PF care for everyone.

The Lived Experience Panel puts the voice of those affected by PF at the heart of everything OneVoiceILD will do. Share your experience and help drive the future of PF care.

We welcome applications from all walks of life and forms of experience. The role description for members of our lived experience panel can be found in the document linked below.

If you have any questions about the lived experience panel, the steering group, or any further information, please do not hesitate to get in touch at

Frequently asked questions

What is a lived experience panel?

What would be expected from me?

Do I have to have ILD to be involved?

How big of a commitment is this?

Will I receive emotional support while taking part?