A diagnosis of pulmonary fibrosis can leave you feeling scared, isolated and alone, particularly because the disease is not well-known. Support from people who understand can transform how you live with pulmonary fibrosis
None of my friends realise how serious this is. If I had cancer, they’d understand but they just think I’ve got a bad chest.

Support groups

There are around 89 local support groups across the UK for patients with pulmonary fibrosis and their carers which are listed on our website.

Pulmonary fibrosis support line

You can contact APF by calling: 01223 785 725 or emailing us on support@actionpf.org

Find out more about the support line.

Support for carers

Caring for someone who is ill can be physically and mentally exhausting. There are dozens of support services available for carers.

Find out more about support for carers

Other organisations

Many organisations provide information and support services. Find out more about support from other organisations.

Our website and resources provide general information only. We cannot provide medical advice, treatment or prescriptions, nor can we assess/decide what services or clinicians you should be referred to. Support with these matters will need to be provided by your existing healthcare professional teams.

APF is not responsible for any errors or omissions or for any loss or damage suffered by users resulting from the information published on our website or in our resources.

Further information for carers:

Your essential caring guide (PDF)
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