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A diagnosis of pulmonary fibrosis can leave you feeling scared, isolated and alone, particularly because the disease is not well-known. Support from people who understand can transform how you live with pulmonary fibrosis
None of my friends realise how serious this is. If I had cancer, they’d understand but they just think I’ve got a bad chest

Support groups

There are around 80 local support groups across the UK for patients with pulmonary fibrosis and their carers which are listed on our website.

Pulmonary fibrosis support line

You can contact Lucy, APF’s specialist ILD Nurse by calling: 01223 785 725 or emailing us on supportline@actionpulmonaryfibrosis.org

Find out more about the support line

Support for carers

Caring for someone who is ill can be physically and mentally exhausting. There are dozens of support services available for carers.

Find out more about support for carers

Other organisations

Many organisations provide information and support services. Find out more about support from other organisations.

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