Fundraise for Action for Pulmonary Fibrosis

I’m running for Action for Pulmonary Fibrosis because my Dad no longer can

Can you fundraise for Action for Pulmonary Fibrosis?Join hundreds of people who every year raise much needed funds to support people affected by pulmonary fibrosis - and have fun whilst doing it!

Climbing high or sky diving, biking or hiking, baking a cake, swimming a lake: there are endless ways you can get involved in or organise events to support Action for Pulmonary Fibrosis.  For inspiration, have a look at our featured fundraisers.

Sign up now and we will support you all the way.

Featured fundraisers

Dominic's IRONMAN Hamburg Challenge

Over £2300 raised for APF

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Timmy's 4 Peak Challenge

Over £3000 raised for APF

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Tracy's Miles and Mountains Challenge

Over £3000 raised in memory of Uncle Fergus

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Nicole is our Fundraiser of the Week!

My name is Nicole, I am taking part in the Step-Up challenge in memory of my Dad, Tony who we sadly lost to IPF in 2016.

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Sisters walking 100k

June and Yvonne are walking 100k in march in memory of their dad

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Amelia and Dexter go walking

Steph O’Connor and her children, Amelia (9) and Dexter (7) are walking 50 miles together in March

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Harrison's Bored to Bald!

Over £900 raised in memory of Grandad Gordon

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Sophie, Leanne and Angie

Raised £1750 during Jog on January in memory of Nicky Gilks

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Personal Stories

Liz and living with cough

Liz was diagnosed with non-specific Interstitial Pneumonitis(NSIP) in 2011. This was subsequently amended to RA-ILD when the inflammatory arthritis was diagnosed two years later. Liz talks about the impact of having a persistent cough.

Robert and the Idiopathic pulmonary fibrosis cough

Robert, 70 from Lincolnshire, was diagnosed with IPF in 2020, he speaks about the impact of the persistent pulmonary fibrosis cough and ways of managing it.

John and the impact of the pulmonary fibrosis cough

John, 63 years from Bournemouth, was diagnosed with IPF in April 2017. John talks about the impact of having a cough and how it affects his day to day life.

Pepe Gonzalez and managing the pulmonary fibrosis cough

Pepe, 69yrs, from London was diagnosed with IPF in 2015. Pepe talks about the pulmonary fibrosis cough and ways of not letting the illness spoil daily life.

Physiotherapist Manisha and Nurse Claire talk hospices and palliative care

Physiotherapist Manisha and Nurse Claire talk about the day to day life of Hospice care and the impact it has on patients and their families.

Wendy Dickinson remembers her dad Peter Taylor

APF Trustee Wendy Dickinson talks about her dad Nottingham Forest manager Peter Taylor who was diagnosed with IPF in 1987 and lived with the condition for three years. She discusses her motivation for joining the charity, and her hopes for the future

Sukh Kaur remembers her Dad Malvinder

Sukh's dad was diagnosed with IPF in June 2017, aged 63, just days after her uncle passed away with the same illness. Sukh shares her story of her dad who was"an amazing pillar of strength".

Tricia : living with hypersensitivity pneumonitis

Tricia Kay, 74, has Hypersensitivity Pneumonitis, Tricia shares her story of the impact of the support line. "I feel I can 'let go' if there is anything I want to discuss which I would normally bottle up and keep from my family."

Dawn: pulmonary fibrosis and getting support

Dawn 51, is living with pulmonary fibrosis and has been supported by the APF support line. "You don’t meet many younger people like myself with PF and it’s rare to find someone who understands what you’re experiencing".

Susan: frontline nursing to homeworking

Susan has pulmonary fibrosis. Overnight she switched from frontline nursing to front room home working. Susan talks about her experience of volunteering as a Patient Ambassador with APF during the last 10 months of Lockdown.

Dee: being a carer and getting support for you

Dee and Roger Bryan set up the West Kent PF, Dee, as a carer herself, also started a carer’s group last year in March 2019.

Sheetal

Sheetal was a devoted mother to her daughter, Naisha, and a successful property lawyer when she was diagnosed with a rare form of pulmonary fibrosis (Pleuroparenchymal Fibrolastosis – PPFE) in 2015 at the young age of 38.

Anisa and her beloved Nana

Anisa Rasheed decided that this year, for her birthday, she would set up a Facebook Birthday Fundraiser asking her friends and family to donate to Action for Pulmonary Fibrosis instead of buying her presents. She was delighted to have raised £160!

Ruby and Subita

Ruby is a volunteer for APF and passionate about helping others. "Anything I can do to help anyone with pulmonary fibrosis or affected by it, comes from the core values that mum installed in me and wanting to have a legacy in mum"

Antony

Antony (pictured with his partner Allison) was diagnosed with idiopathic pulmonary fibrosis (IPF) in his 50s in 2015. He is a self-employed computer engineer, fixing people’s computers in their homes.

Tony and Sue

‍Many people care for loved ones with pulmonary fibrosis. Tony, in his fifties, gave up work and now cares for his wife Sue who has IPF. Sue is on anti-fibrotic drugs and currently being assessed for transplant. Tony reflects on his experiences.

Catherine

Catherine Traynor's mum was diagnosed with pulmonary fibrosis in April 2019, having previously been incorrectly diagnosed with sarcoidosis the previous year. Sadly, her condition deteriorated rapidly and she passed away just before Christmas.

Charlie

In October 2018 Charlie was diagnosed with idiopathic pulmonary fibrosis. After the initial shock, he and his family have set about raising awareness and much needed funds for Action for Pulmonary Fibrosis.

Ron and Myles

Friends Myles Greensmith and Ron Fish are keen advocates of exercise and pulmonary rehabilitation. After meeting at the Papworth Support Group some five years ago, they quickly established they were both interested in playing golf to stay active.

Sylvia

Living with idiopathic pulmonary fibrosis has affected Sylvia’s mental wellbeing, particularly during lockdown. In her own words, she discusses how the support of her family, getting outside and pulmonary rehab has been a turning point for her.