Janice Long joins forces with Action for Pulmonary Fibrosis for second year running

Janice Long Photo
15
September 2020

Are you interested in using your lived experience and voice to help us shape the future pulmonary fibrosis research?

Janice is passionate about increasing understanding of the disease in memory of her late brother Keith Chegwin who sadly died in 2017.

Janice said:

“Before Keith was diagnosed none of our family had heard of IPF, it came as a total shock and everything happened so quickly. We had no idea how devastating this disease is or how quickly the disease would worsen. It was a terrible time for Keith and the whole family as we all tried to support him and come to terms with his declining health. I’m calling on GPs to think of IPF and ‘Listen to our lungs’ when people visit them with IPF symptoms - to support this we all need to be more aware of IPF and seek help if we have an ongoing cough or breathlessness.”

Louise Wright, CEO of APF said:

“We are absolutely delighted to have the support of Janice Long.  IPF is the forgotten lung disease and having the support of Janice helps to shine the spotlight on IPF and our ‘Listen to Our Lungs’ campaign. The challenge of living with IPF has been even more difficult in the last six months as the global pandemic has been a time of extreme worry and extra pressures.  We can’t thank Janice enough for her support.”