The 2025 PF State of the Nation Survey is now open!

The 2025 ‘Pulmonary Fibrosis State of the Nation’ survey launched today, and is available to complete online, over the telephone or via freepost return of the paper version. This is your chance to contribute your feedback to help transform the future care for the PF community.  

If you’re living with PF, caring for someone who is, or grieving a loved one lost to this devastating disease, you play a key role in driving urgent improvements. Each response is a powerful tool in the call for better care, faster diagnosis, and ensuring the level of support those living with PF deserve. 

“Your voice is more than data. It’s a force for change.”  - Bradley Price, Director of Policy, Research and Involvement at APF. “By bringing together experiences from all over the UK, we can transform the future of care for everyone affected by PF.” 

“I didn’t realise what I had to offer until I got involved... we [people with lived experience of PF] are a key part of the solution” – Ronnie, living with IPF. 

The online survey will remain open until Midnight on 30^th June 2025.  If you are completing a paper version via freepost return, please aim to post this to the address on the form by 30^th June as surveys received after 14th July cannot be included. We send our sincere thanks to all who complete and share this survey to help collect vital information!  

Share your experience now: Click Here to Complete the Survey in English. ‍

The survey is also available in:

• Welsh - I gwblhau'r     arolwg yn Gymraeg, cliciwch yma. 
• Polish - Aby wypełnić     ankietę po polsku, kliknij tutaj. 
• Punjabi - پنجابی وچ     سروے مکمل کرن لئی، ایہہ تے کلک کرو. 

Any questions, contact Lisa at policy@actionpf.org  

If you prefer to complete the survey over the phone, you can do so now by calling 01223 785 725.

Paper versions will also be available from info@actionpf.org

For any other translation, we will soon be offering LanguageLine (date TBC) over the phone at 01223 785 725.

Thank you for taking part and please encourage others in your life and community to join the call for change!