Find a research study

Ask your healthcare team about taking part in research

Learn about research that is happening in the UK today. Participating in research can help us understand more about PF and find better, more effective treatments. You may be able to take part – search for recruiting studies.

Are you a researcher currently recruiting participants in the UK? If you would like your study included on this page, please complete this online form.

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Idiopathic Pulmonary Fibrosis (IPF)
Other forms of pulmonary fibrosis
Healthy volunteers
Northern Ireland
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England
Further explanation
Trial phase

There are 3 main phases of clinical trials:

  • Phase 1 is the earliest stage of research, where there is often a focus on understanding if the treatment is safe or if it causes any side effects.
  • Phase 2 still focuses on safety and side effects, but also tries to find out more about what is the best dose.
  • Phase 3 often compares the new treatment to existing treatments or lookalike medications.

As drugs or interventions move into the different phases, the number of people taking part will increase. Not all studies will make it to the later phases, especially if the intervention is not found to be safe or effective in phase 1 and 2.

Further explanation
Trial phase

There are 3 main phases of clinical trials:

  • Phase 1 is the earliest stage of research, where there is often a focus on understanding if the treatment is safe or if it causes any side effects.
  • Phase 2 still focuses on safety and side effects, but also tries to find out more about what is the best dose.
  • Phase 3 often compares the new treatment to existing treatments or lookalike medications.

As drugs or interventions move into the different phases, the number of people taking part will increase. Not all studies will make it to the later phases, especially if the intervention is not found to be safe or effective in phase 1 and 2.

Further explanation
Trial phase

There are 3 main phases of clinical trials:

  • Phase 1 is the earliest stage of research, where there is often a focus on understanding if the treatment is safe or if it causes any side effects.
  • Phase 2 still focuses on safety and side effects, but also tries to find out more about what is the best dose.
  • Phase 3 often compares the new treatment to existing treatments or lookalike medications.

As drugs or interventions move into the different phases, the number of people taking part will increase. Not all studies will make it to the later phases, especially if the intervention is not found to be safe or effective in phase 1 and 2.

Further explanation
Open-label extension

Some studies offer an extension phase of research, where people continue to receive the new drug or therapy after the initial trial has finished. The extension phase is often ‘open-label’, which means that you will know that you are receiving the active treatment .

Further explanation
Can continue on antifibrotics

Within studies, there are different requirements that someone must meet, to be able to take part. Some studies recruit people who are taking antifibrotic medications, including nintedanib or pirfenidone. However, in other studies people taking part must not be taking antifibrotic medication.

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 result/s

Can a supportive breathlessness website help people with chronic lung diseases?

Results available
Upcoming
Recruiting
Closed
12 weeks
participation
12 weeks
participation
SELF-BREATHE study looking how an online supportive website can help reduce breathlessness for people with chronic lung diseases

Pulmonary fibrosis can cause chronic breathlessness which makes breathing difficult and cause a significant impact on daily life and activities. There is currently a lack of supportive services for people experiencing chronic breathlessness and this can lead to frequent Accident and Emergency (A&E) hospital visits with people seeking help.

An online supportive breathlessness website called SELF-BREATHE has been developed by a research team. The website contains supportive information and self-management tools that people with chronic breathlessness can do at home themselves.

The aim of the study if to find out if using SELF-BREATHE can help peoples' breathlessness, and improve their quality of life.

Other research
Hybrid
Can continue on antifibrotics
England
Idiopathic Pulmonary Fibrosis (IPF)
Other forms of pulmonary fibrosis
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APF does not endorse or recommend any specific study. All responsibility for the study remains with the sponsors and investigators. You may still be able to take part if studies aren't local to you. Every effort is made to keep these details up to date. If you are aware of any inaccuracies, please email research@actionpf.org. You may also request for a study to be added.

This page is under development. We welcome your feedback! Please email research@actionpf.org.

Are you a researcher currently recruiting participants in the UK? If you would like your study included on this page, please complete this
online form.

Can't find anything that interests you?
Check back soon as we regularly update these pages.