Do you want to improve the care of people with pulmonary fibrosis? Not everyone with the disease has timely access to the treatments, care and support they need to live well for longer. We want to change this.

Improving pulmonary fibrosis care together

#OneVoiceILD is a growing network striving to improve treatment, care and support for people affected by pulmonary fibrosis. We’re addressing the issues that people with pulmonary fibrosis are most concerned about and finding solutions to these problems. We aim for everyone affected by pulmonary fibrosis to have a better quality of life and longer life expectancy.

We’re coming together with:

  • People affected by pulmonary fibrosis
  • Clinicians across the UK
  • Corporate supporters
  • Other charities
  • Members of Parliament

to form #OneVoiceILD.

Our current priorities

It’s an exciting time for #OneVoiceILD as we’re in the early stages of our plans. Our priorities right now are to:

  • Raise awareness of pulmonary fibrosis with parliamentarians who can support our mission.
  • Gather data to build an accurate picture of the care received by people living with pulmonary fibrosis and the impact on their quality of life.
  • Develop the gold standard in care that will help clinicians and people living with pulmonary fibrosis know what to expect from pulmonary fibrosis care and when to expect it.
Key concepts from the #OneVoiceILD meeting in Feb 2023.
Click for full size image.

Over the next few months, there’ll be opportunities to get involved with #OneVoiceILD to help us bring the change we all want to see.

Why we need you

We see stories similar to Mohammed’s far too often. Help us make pulmonary fibrosis care equitable for all.

Keep up-to-date and find out how you can get involved by signing up for the #OneVoiceILD mailing list.