Keep in touch with friends and family
- Give them a call to see how they are doing
- Video call using Whatsapp Video Call
- Use a video platform such as Zoom or Skype
If you need any help using a smartphone or an online video system to stay connected to people you care about let us know. Email us on info@actionpf.org – we are here to help you!
If you've not used Zoom before, John Conway (St George’s ILD Support Group) explains how to use it in this fantastic video.
Staying connected with support groups
If you are a support group leader:
- We can put you in touch with other group leaders.
- Join our regular support group leader meeting. Learn from other group leaders and share ideas on how to get the most from your support group. For more information, email us at info@actionpf.org
If you are a member of a support group, or would like to be:
- Ask your support group leader if they can put you in touch with someone else from the group via the phone. To find out more about local or shared interest support groups (such as carers or transplant) see our Support groups page, or we can link you up.
Call our support line
Our friendly support line team are here if you need to talk. You don't need to have a specific question to call us. We'll always listen to your story if you just need to talk.
Please call us on 01223 785 725 Monday to Friday between 9am and 5pm.
Alternatively, you can email us on supportline@actionpf.org or you can request a call back by submitting the form on this webpage.
Chat with a telephone befriender
Talk to someone who has experience of pulmonary fibrosis with APF’s telephone befriending service.
Other contacts
Samaritans
116 123 (freephone)
Samaritans are open 24/7 for anyone who needs to talk.
AGE UK
Information and support for older people.
Age UK’s English helpline is open 8am to 7pm, every day of the year.
The SilverLine
Provides support, information, friendship and advice for anyone aged over 55 who may feel lonely or isolated. The Silver Line is open 24 hours a day, every day of the year.
Cruse
Cruse offers bereavement support and information. Their helpline is open 9.30am - 3pm, Monday to Friday.
Stay in touch with APF
- Follow us on social media – we will be posting news, information and sharing positivity from our community to keep us all connected during this challenging time.
- Keep an eye on our website – we’ll be keeping it up to-date with the latest news
Look out for emails from APF – if you want to hear from us via email you can sign up on our website www.actionpulmonaryfibrosis.org/
Information provided by Action for Pulmonary Fibrosis (APF) is not a substitute for professional medical advice. It’s intended as general information only. APF is not responsible for any errors or omissions or for any loss or damage suffered by users resulting from the information published on actionpf.org.
Further information for carers:
