"Life With IPF" Podcast Released with patient Sylvia and Honey Langcaster-James

October 2020

Are you interested in using your lived experience and voice to help us shape the future pulmonary fibrosis research?

Stay as positive as you can and do not dwell

Sylvia was diagnosed with idiopathic pulmonary fibrosis (IPF) in December 2016, which she and her family found devastating. However, over time her understanding of the condition and how to deal with it has grown, to the point where she is now able to take on each day with a more positive outlook. Through her own sheer determination, the support of a local group, and of course her husband and family, she has discovered her own personal coping mechanisms to experience new ways of enjoying life.  

We would like to give our warmest thanks to Sylvia  and Honey for allowing this conversation to be documented, which we hope will in turn help our patients and families feel less alone.

You can listen to the podcast below, and if you have any technical issues please get in touch.  

This has been supported by funding through a partnership with Boehringer Ingelheim,  to help drive greater recognition of the disease and support people living with IPF.

Let us know your thoughts and feedback! We’d love to hear how you found the podcast. Get in touch with us on our socials at @ActionPFCharity on twitter, or via email at info@actionpf.org

Read more about Sylvia's story.