New telephone service reaches out to people with Pulmonary Fibrosis

Cup of coffee with macarons in the background
April 2020

Are you interested in using your lived experience and voice to help us shape the future pulmonary fibrosis research?

A new service is being pilotedto support people with a pulmonary fibrosis during the Covid-19 crisis.

Launched in Volunteers Week, the telephone support ambassadors scheme from Action for Pulmonary Fibrosis brings trained volunteers alongside anyone with PF or who is supporting someone with the progressive breathing condition.

The volunteers - a mix of people with PF, carers, and former carers - will offer a listening ear and peer support by phone for people with PF and carers during the Covid-19 crisis, particularly through the long periods of isolation that can arise when shielding at home.

The calls will include a check that people are getting the support they need and signposting to other services, including PF support groups and the charity’s nurse-run Support Line.

The training covers practical aspects of the role, safeguarding, emotional wellbeing, and the issues that people with PF may be facing. The first volunteers are ready to start making calls.

Debra Chand, National Support Manager, said: ‘Through their lived experience, our volunteers understand how tough life with PF can be and the added pressures that isolation can bring. They will be giving a few hours each week to get alongside others and offer peer support. We are so grateful, and excited to see where the pilot will lead.’

The scheme is open to referrals by health professionals, support groups and self-referrals. Anyone who would appreciate a call should let the APF team know on or by calling 01733 475642.

The charity will be running more training soon and would love to hear from anyone who is interested in becoming a telephone support volunteer on