Are you interested in using your lived experience and voice to help us shape the future pulmonary fibrosis research?
About this study
Pulmonary rehabilitation is an exercise and education program that is recommended for people with certain chronic respiratory diseases, including pulmonary fibrosis.
Pulmonary rehabilitation classes often run over several weeks or months and can help patients to manage symptoms and cope with the effects of breathlessness on daily living activities. However, participation and completion of pulmonary rehabilitation often faces many different barriers.
The aim of this study is to design a financial incentive scheme to improve pulmonary rehabilitation referral, uptake and completion among people with chronic respiratory conditions and to design a study to investigate this scheme works.
Trial type: Non-therapeutic/other research
Recruitment aim: 16 patients & 16 healthcare professionals or commissioners
Duration of participation: Single interview with optional further engagement
What is involved?
During the study, the researchers will interview 16 people with chronic lung conditions, including those with pulmonary fibrosis, and 16 healthcare professionals and clinical commissioners to understand what is thought about using financial incentives to encourage participation in pulmonary rehabilitation. The interviews will be done online (e.g. a software programme like Zoom) or by telephone, depending on your preference, and will last 30-40 minutes. If you wish, your carer or family member can also attend the interview.
After the interviews, the research team will hold two online workshops, which will last two hours, to develop the financial incentive scheme. You have the option of putting your name forward to attend these workshops and the researchers will select two people to join the workshop.
After the first workshop, the researchers will hold a one-hour online meeting for people with lung conditions, and a separate one for healthcare professionals and clinical commissioners, to share what the financial incentive scheme may look like and to get your feedback. If you don’t use the Internet, the researchers will ask your opinion by telephone.
Summary of involvement
- 30-40 minutes interview
- Online workshops
- All participants will be invited to an online meeting to share the information that the researchers have gathered
Can I take part?
You may be able to take part if you have a chronic lung condition, such as pulmonary fibrosis, and have access to the internet or a telephone.
If you are not able to take part in this research study, there may be other opportunities for you to take part in different studies.
You may be able to join this study if you have a:
- Diagnosis of a chronic respiratory disease
You will not be able to join the study:
- If you don't have access to either the internet or the telephone
What difference could taking part make?
Taking part in this study will help researchers to understand if a financial incentive scheme could improve pulmonary rehabilitation referral, uptake and completion among people with chronic respiratory conditions. Understanding more about this will help to identify ways to increase participation and ultimately management of disease.
Where does the study take place?
Anywhere is the UK.
How to take part
Please take a look at the Study Invitation Letter.
If you would like to discuss the research study or find out more information, please contact the research team. You can do this by emailing: Coin_Study@brunel.ac.uk or phone +44(0)1895 265949 and leave a message. The research team will return your call as soon as they can.
The summary on this page provides information about an opportunity to participate in research. More detailed information about the study can be found via the following the links and through contacting the research team.
If you have any questions about this research study, please speak to your medical team and contact the researchers directly via: Coin_Study@brunel.ac.uk
This study is supported by: Brunel University London
APF does not endorse or recommend any specific study. All responsibility for the study remains with the sponsors and investigators.
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