Research Opportunity: Online Survey about Sexual Function for People Living with Pulmonary Fibrosis

May 2023

Are you interested in using your lived experience and voice to help us shape the future pulmonary fibrosis research?

Click here to take part.

About this study

There is currently limited information and understanding about sexual function in patients with PF.

This study aims to learn if sexual dysfunction is common in patients with PF.

The study will gain greater understanding about patients’ concerns and feeling around their sexual function. This knowledge will help to improve care and quality of life for patients.

Trial type: Completing a questionnaire, taking part in a survey
Recruitment aim: 200 participants
Duration of participation: 10-minute Survey

What is involved?

This study will involve completing one online survey, which should take approximately 10 minutes to complete. The survey will ask different questions about PF and your thoughts about sexual function.

The survey is anonymous and no identifiable information will be kept with the data collected. All data will be confidential.

After completion of the 10 minute survey, there will be an additional opportunity to volunteer to take part in a follow-up interview. Should you wish to take part, this would require people to provide their email address in order to contact you to arrange the additional interview, but only after completion of the anonymous survey.

Click here to take part.

Summary of involvement

⦿ 10 minute online survey

⦿ Optional follow-up interview

Can I take part?

You may be eligible to take part if you are over the age of 18, and have a diagnosis of pulmonary fibrosis (PF) or interstitial lung disease (ILD).

In research studies, there are lots of different reasons why you may or may not be able to take part. These are known as inclusion and exclusion criteria (see list below). Only the clinical trial team will be able to fully determine whether you are able to take part in the study.

Inclusion criteria

You may be able to join this study if all of these apply:

⦿ Diagnosis of PF or ILD

⦿ Over the age of 18

Exclusion criteria

You will not be able to join the study of any of the following applies:

⦿ Under the age of 18

⦿ People who do not have a diagnosis of PF

You can withdraw at any point.

What difference could taking part make?

There is currently a distinct lack of research that has been carried out in this area, meaning that little is known about sexual function in people diagnosed with PF. This study will enable greater understanding of the impact that a diagnosis of PF has on their sexual function, how this makes people feel, and highlight any potential concerns. This knowledge will help to improve the care provided to people with PF, which can ultimately improve quality of life.

Where does the study take place?

Study location: Worldwide

Further information

The summary on this page provides information about an opportunity to participate in research. More detailed information about the study can be found via the following the links.

If you have any questions about this research study, please speak to your medical team and contact the researchers directly via:

Link to contact form

This study is funded by:

This study is one of several research studies currently recruiting participants in the UK.  You can search for all available trials using the European Pulmonary Fibrosis Federation (EU-IPFF) clinical trial finder or by searching on

APF does not endorse or recommend any specific study.  All responsibility for the study remains with the sponsors and investigators.

You may also be interested in our Clinical Trials webpage.

If you need any support, information or advice on living with pulmonary fibrosis, we are here to help.