What next?
What next?
About this study
There is currently limited understanding about the experiences of air travel for people living with pulmonary fibrosis and the effect that is has. This study is an online survey about the flight experiences of people living with pulmonary fibrosis.
The study aims to learn how pulmonary fibrosis can impact air-travel, including pre-flight, during the flight and post-flight.
There are many different types of research. These studies might ask participants to test different treatments, devices, or complete questionnaires. Some studies may not require any involvement from people affected by PF, but instead look at cells in a lab environment, animal models, or utilise computer modelling.
A study involving people can be:
- Interventional – participants are given an active treatment decided by researchers. This could be a change in medication or lifestyle (e.g. exercise, diet, complementary wellbeing therapy, or symptom management). These are commonly known as clinical trials.
- Observational – participants are assessed for specific changes over time, but researchers do not alter their standard treatment or care (e.g. questionnaires to understand the impact of symptom, or patient registries that track trends in how disease affects people or the services that are provided).
There are 3 main phases of clinical trials:
- Phase 1 is the earliest stage of research, where there is often a focus on understanding if the treatment is safe or if it causes any side effects.
- Phase 2 still focuses on safety and side effects, but also tries to find out more about what is the best dose.
- Phase 3 often compares the new treatment to existing treatments or lookalike medications.
As drugs or interventions move into the different phases, the number of people taking part will increase. Not all studies will make it to the later phases, especially if the intervention is not found to be safe or effective in phase 1 and 2.
The recruitment aim is the number of people that researcher want to take part in the research study.
What is involved?
This study will involve completing one online survey, which should take you approximately 15 minutes to complete. The survey will ask questions about how living with pulmonary fibrosis affects you prior to travelling, in-flight and after flying on an aircraft. All your information collected in the survey will be kept confidential. If you decide to take part, you will sign a consent form. At any point of the study, you are free to stop or withdraw without giving a reason.
To take part in this study, please visit the online page for the survey.
Summary of involvement
15 minute online survey
Can I take part?
You may be able to take part if you have access to an electronic device that can access the online survey, and have a diagnosis of pulmonary fibrosis or an interstitial lung disease.
In research studies, there are lots of different reasons why you may or may not be able to take part. These are known as inclusion and exclusion criteria (see list below). Only the clinical trial team will be able to fully determine whether you are able to take part in the study. You can withdraw at any point.
If you are not able to take part in this research study, there may be other opportunities for you to take part in different studies.
To find our more about other research opportunities visit our research finder main page.
An adult with a diagnosis of pulmonary fibrosis or an interstitial lung disease
Under the age of 18
Unable to provide consent
What difference could taking part make?
There is currently little information available about the experiences of air-travel for people diagnosed with pulmonary fibrosis. The study will help to understand the needs and barriers to flying with pulmonary fibrosis. This information will help to make recommendations to the current guidance and highlight what is important for people affected by pulmonary fibrosis.
Where does the study take place?
Study locations
Online
This survey can be completed anywhere if you meet the inclusion criteria and isn't restricted by geographical location.
How to take part
You can take part by visiting the online survey page.
If you would like further information about the study, please email iain.stewart@imperial.ac.uk or au420@ic.ac.uk
Further information
The summary on this page provides information about an opportunity to participate in research. More detailed information about the study can be found via the following the links and through contacting the research team.
If you have any questions about this research study, please speak to your medical team.
This study is supported by
APF does not endorse or recommend any specific study. All responsibility for the study remains with the sponsors and investigators.
Every effort is made to keep these details up to date. If you are aware of any inaccuracies, please email research@actionpf.org