What next?
What next?
About this study
This study is looking at oxygen for the treatment of respiratory failure in the UK. Oxygen is classified as an essential medicine by the World Health Organisation (WHO). While its benefits are established for people with pulmonary fibrosis, oxygen is a drug, and inappropriate use can pose a risk to the people using it. This highlights the need for careful administration and up-to-date, evidence-based clinical guidelines to maximise benefit and minimise harm.
This study uses a Delphi method, which is a research design that gathers opinions from various people through multiple rounds of surveys. This helps to create a consensus agreement for particular statements relating to a topic.
The results will be used to develop a regulatory framework. To start with, the researchers are running a pilot study and are looking for a small number of people affected by pulmonary fibrosis to test the survey. This will then be further developed for sharing with the wider community.
The researchers aim to create agreed consensus statements related to oxygen therapy use for people in the UK.
What is involved?
You will be asked to answer questions related to oxygen. There are different formats to the questions, including: rank-order questions, rating scales, and open-ended questions to give your opinion and feedback on the survey clarity, relevance, and structure of the questions and statements, as well as suggestions for improvement.
The survey is completed online and should take no longer that 15-30 minutes.
This is a pilot survey and the full survey will be launched later this year, where more people can take part.
Summary of involvement
Online survey taking 15-30 minutes to complete
Can I take part?
You may be able to take part if you are
In research studies, there are lots of different reasons why you may or may not be able to take part. These are known as inclusion and exclusion criteria (see the main criteria list below). Only the research team will be able to fully determine whether you are able to take part in the study. You can withdraw at any point without this effecting your usual care or treatment.
If you are not able to take part in this research study, there may be other opportunities for you to take part in different studies.
To find out more about other research opportunities visit our research finder main page.
You must live in the UK.
You must fit into one of the following criteria:
1. You are aged 16 or older using oxygen therapy at home or in hospital.
2. You are a family member or caregiver of someone using oxygen therapy.
3. You are a healthcare professional, such as clinician, nurse, pharmacist and others who prescribe or administer oxygen therapy.
4. You are a regulator – This includes professionals involved in the oversight, policy development, and enforcement of medical oxygen regulations.
5. You are involved in the supply or manufacturing process of oxygen therapy and associated equipment.
You have no experience or knowledge of oxygen therapy.
What difference could taking part make?
By contributing your experience and expertise, you will help to shape an expert consensus on key issues related to medical oxygen therapy, which may inform future clinical practice, policy, or research.
Where does the study take place?
Study locations
How to take part
You can take part in this study by visiting the Online survey
Further information
This page is a summary which provides information about an opportunity to participate in research. More detailed information about the study can be found via the following the links and through contacting the research team.
If you have any questions about this research study, please speak to your medical team.
shams.al-ani@kcl.ac.ukThis study is supported by
This page provides a lay summary of the research study and does not contain all the information needed to inform decisions about taking part. Please speak to your medical team or the study research team in relation to specific details about the study.
Action for Pulmonary Fibrosis does not endorse or recommend any specific study. All responsibility for the study remains with the sponsors and investigators. Every effort is made to ensure that these details are correct and are kept up to date. If you are aware of any inaccuracies, please email research@actionpf.org