SELF-BREATHE study looking how an online supportive website may help reduce breathlessness for people with chronic lung diseases

Upcoming study
Expected to open May 2024
This study is currently recruiting
Expected to close February 2028
This study is closed
This study closed in February 2028
We will update this page with study results when available.
Information on study results are included below
This study closed in February 2028
Ask your healthcare team about taking part in research

What next?

Original listing:

What next?

Original listing:

About this study

Pulmonary fibrosis can cause chronic breathlessness which makes breathing difficult and cause a significant impact on daily life and activities. There is currently a lack of supportive services for people experiencing chronic breathlessness and this can lead to frequent Accident and Emergency (A&E) hospital visits with people seeking help.

An online supportive breathlessness website called SELF-BREATHE has been developed by a research team. The website contains supportive information and self-management tools that people with chronic breathlessness can do at home themselves.

The aim of the study if to find out if using SELF-BREATHE can help peoples' breathlessness, and improve their quality of life.


What is involved?

A computer will randomly assign you to one of two groups.

  • Group one: you will continue with your usual care
  • Group two: you receive your usual care plus have access to the SELF-BREATHE website resources.

You will be asked to fill in some questionnaires at the start of the study, and again at 7 and 12 weeks after the study started. The questionnaires will ask how breathlessness impacts your life, and about any planned or unplanned hospital visits. Once the study has ended, the researchers will compare the answers to the questionnaires and see if there are any differences between the two groups.

Summary of involvement

Participation for 12 weeks

You will either receive:

Your standard care OR your standard care plus SELF-BREATHE


Can I take part?

You may be able to take part if you are aged 18 years and over, and experience chronic breathlessness as a result of chronic lung disease, such as pulmonary fibrosis.

In research studies, there are lots of different reasons why you may or may not be able to take part. These are known as inclusion and exclusion criteria (see list below). Only the research team will be able to fully determine whether you are able to take part in the study. You can withdraw at any point.

If you are not able to take part in this research study, there may be other opportunities for you to take part in different studies.

To find our more about other research opportunities visit our research finder main page.

You may be able to join this study if all of these apply:

Aged 18 years and over

Chronic breathlessness at rest and/or during activity

Diagnosis of a chronic lung disease, such as pulmonary fibrosis

Access to a computer, tablet or smart phone that has internet

You will not be able to join the study of any of the following applies:

Breathlessness of unknown cause

Diagnosis of chronic hyperventilation syndrome

Currently taking part in a rehabilitation programme, such as pulmonary rehabilitation

What difference could taking part make?

Taking part in this study will help researchers to understand if the SELF-BREATHE website and breathlessness management tools help to improve breathlessness and reduce unplanned hospital visits, such as visiting A&E due to breathlessness.

Where does the study take place?

Study locations

King's College Hospital NHS Foundation Trust

How to take part

You may be able to take part if you are receiving care at King's College Hospital. If you are interested in taking part in research, please speak to your healthcare team.

Further information

This page is a summary which provides information about an opportunity to participate in research. More detailed information about the study can be found via the following the links and through contacting the research team.

If you have any questions about this research study, please speak to your medical team.

This study is supported by

King's College Hospital NHS Trust
Study ID number:

APF does not endorse or recommend any specific study. All responsibility for the study remains with the sponsors and investigators.

Every effort is made to keep these details up to date. If you are aware of any inaccuracies, please email