East Sussex ILD Support Group

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Holidaying with pulmonary fibrosis
When you’re living with pulmonary fibrosis (PF), going on holiday might need a bit more planning and preparation. We’ve written this guide to help you think about your needs so you can enjoy your holiday.

Read more here.

Being diagnosed and living with a lung condition can be challenging. Support groups offer the opportunity to meet others who understand what you are going through and are open to anyone affected by pulmonary fibrosis - patients, family, carers and friends.

We have a range of speakers on topics such as singing for lung health, keeping active, healthy eating, mental wellbeing, travel insurance and the latest news in research and treatments. Specialist staff are sometimes available for information and advice, and we also arrange informal social events from time to time. Why not come to one of our meetings and check us out?

Contact details

Rosie Boorsma,

Specialist Respiratory Practitioner Nurse (ILD Link)

R.E.S.P.S Team


07970 326689

When we meet

Patients, family, friends, and carers are welcome to attend to meet other people in similar situations and learn about ILD and how to manage it.
This page will be updated periodically with the dates of each face-to-face meeting and where they will be held.

Upcoming dates

Every 3 months face to face

Confirmation of attendance is essential via the email : esht.ildsupportgroup@nhs.net

Next Eastbourne Support Group will take place on 5th July 2024 2-4 pm at St Wilfred's Hospice, Eastbourne BN22 9PZ

Next Hastings Support Group will take place in 15th August 2024 2-4pm St Michael’s Hospice, St Leonards On Sea TN38 0LBt

We look forward to seeing you.

Where we meet

The face-to-face sessions are at:

St Michael’s Hospice
25 Upper Maze Hill
St Leonards On Sea
TN38 0LB


St Wilfrids Hospice
1 Broadwater Way
BN22 9PZ

Confirmation of attendance is essential via the email above.

Get directions on Google Maps