East Sussex ILD Support Group

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Keeping well this winter
During the colder months, there might be a higher risk of catching coughs and colds when meeting face-to-face. If you're concerned about this, please contact the group organiser for information about how group members are keeping in touch, and how the group manages infection risk.

Read more about managing pulmonary fibrosis in cold weather.

Being diagnosed and living with a lung condition can be challenging. Support groups offer the opportunity to meet others who understand what you are going through and are open to anyone affected by pulmonary fibrosis - patients, family, carers and friends.

We have a range of speakers on topics such as singing for lung health, keeping active, healthy eating, mental wellbeing, travel insurance and the latest news in research and treatments. Specialist staff are sometimes available for information and advice, and we also arrange informal social events from time to time. Why not come to one of our meetings and check us out?

Contact details

Rosie Boorsma,

Specialist Respiratory Practitioner Nurse (ILD Link)

R.E.S.P.S Team


07970 326689

When we meet

Patients, family, friends and carers are welcome to attend to meetother people in similar situations and learn about ILD and how to manage it.
This page will be updated periodically with the dates of each face to facemeeting and where they will be held.

We also have a Zoom meeting, please email the address above forfurther details.
Please return here to keep informed.

Upcoming dates

Every 3 months face to face

Confirmation of attendance is essential via the email : esht.ildsupportgroup@nhs.net

Where we meet

The face-to-face sessions are at:

St Michael’s Hospice
25 Upper Maze Hill
St Leonards On Sea
TN38 0LB


St Wilfrids Hospice
1 Broadwater Way
BN22 9PZ

Confirmation of attendance is essential via the email above.

Get directions on Google Maps