Edinburgh & Lothians Pulmonary Fibrosis Support Group

Group of smiling people with PF information material
Information icon

Holidaying with pulmonary fibrosis
When you’re living with pulmonary fibrosis (PF), going on holiday might need a bit more planning and preparation. We’ve written this guide to help you think about your needs so you can enjoy your holiday.

Read more here.

Being diagnosed and living with a lung condition can be challenging. Support groups offer the opportunity to meet others who understand what you are going through and are open to anyone affected by pulmonary fibrosis – patients, family, carers and friends.

We are a new and enthusiastic group with plans to explore a range of themes on topics such as emotional support, benefits / finances, keeping active, and the latest news in research and treatments.  We also aim to invite guest speakers including from clinical teams at the Royal Infirmary of Edinburgh and Western General Hospital. If you live in the Edinburgh or Lothian area, why not come to one of our meetings and check us out?

Contact details

George Guy

07926 589867


When we meet

Monthly, Wednesday evenings from 6.30pm - 8.00pm online

If you would like to attend, please contact George Guy (details above) for Zoom link

Upcoming dates


24th January

21st February

20th March

17th April

22nd May

19th June

24th July

21st August

18th September

23rd October

20th November

18th December

Where we meet

If you would like to connect with us via social media, you are welcome to join our Facebook group.

Edinburgh ILD Peer Support | Facebook

Get directions on Google Maps