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Signpost Patients to Action for Pulmonary Fibrosis

This is something we often hear from the people we support. Help us change this by signposting your patients, their families and carers directly to us.

I wish I had heard about you sooner.

Support for you and your patients

Signposting to us can help you deliver the best care and get the most from your clinical time.

If you have a patient who you feel would benefit from our support, please ask them to:

Contact our Support line on 01223 785 725 (Monday to Friday, 9am to 5pm)
Email us at support@actionpf.org‍
Sign up to receive the APF newsletter packed with useful information about our work and how we can support them.

Why signpost to us?

We’re here to support you to provide the best care for people diagnosed with pulmonary fibrosis, their families and carers.

We will:

Take non-urgent queries to reduce calls to nurse phone lines.
Support people affected by pulmonary fibrosis to be confident with self-management and rely less on healthcare professionals.
Help people affected by pulmonary fibrosis access expert and peer support so they can better self-manage.
Work with ILD teams throughout a person’s journey with pulmonary fibrosis to ensure cohesive and holistic support.
Support people to access local services, including hospices, support groups and carer’s assessments.
Be part of an ILD network, supporting healthcare professionals to advocate for the best clinical care.

Information for recently diagnosed patients

When you signpost to us, we can support patients and families by providing information resources. You can also view and send digital versions of our resources online.

Navigating Pulmonary Fibrosis booklet

Our Navigating Pulmonary Fibrosis booklet is written for people who have been recently told that they (or a loved one) has pulmonary fibrosis, but is also helpful for anyone looking to learn more about PF and APF.

This booklet covers:

about Action for Pulmonary Fibrosis (APF)
what pulmonary fibrosis (PF) is
questions to ask your healthcare team
coming to terms with your diagnosis
telling friends and family
support available from APF.

We also have this information available as an online short course, and as part of Navigating PF webinars.

What other information resources are available?

We have printed information that covers:

Benefits and pulmonary fibrosis
Antifibrotic medication (Nintedanib and Pirfenidone)
Support for family, friends and carers.

We also have a wide range of online information for people who have been newly diagnosed, those living with PF and people caring for someone living with PF.

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