“I wish I had heard about you sooner.”
This is something we often hear from the people we support. Help us change this by signposting your patients, their families and carers directly to us.
Support for you and your patients
Signposting to us can help you deliver the best care and get the most from your clinical time.
If you have a patient who you feel would benefit from our support, please ask them to:
- Contact our Support line on 01223 785 725 (Monday to Friday, 9am to 5pm)
- Email us at support@actionpf.org
- Sign up to receive the APF newsletter packed with useful information about our work and how we can support them.
Why signpost to us?
We’re here to support you to provide the best care for people diagnosed with pulmonary fibrosis, their families and carers.
We will:
- Take non-urgent queries to reduce calls to nurse phone lines.
- Support people affected by pulmonary fibrosis to be confident with self-management and rely less on healthcare professionals.
- Help people affected by pulmonary fibrosis access expert and peer support so they can better self-manage.
- Work with ILD teams throughout a person’s journey with pulmonary fibrosis to ensure cohesive and holistic support.
- Support people to access local services, including hospices, support groups and carer’s assessments.
- Be part of an ILD network, supporting healthcare professionals to advocate for the best clinical care.
Information packs for recently diagnosed patients
When you signpost to us, we can support patients and families by providing a recently diagnosed information pack. You can also view and send digital packs online.
Supported by The Interstitial Lung Disease Interdisciplinary Network (ILD-IN), this pack brings support and information to people who have recently found out they have pulmonary fibrosis. The pack can help people with pulmonary fibrosis and their families to:
- Learn about the disease
- Get the most from their appointments
- Know where to get support
- Feel like part of a community
- Have their questions answered
