Supported by The Interstitial Lung Disease Interdisciplinary Network (ILD-IN), this pack brings support and information to people who have recently found out they have pulmonary fibrosis. The pack can help people with pulmonary fibrosis to:

  • Learn about the disease
  • Get the most from their appointments
  • Know where to get support
  • Feel like part of a community
  • Have their questions answered

What's included in the pack?

You'll find five different booklets in the recently diagnosed pack, including:

  • I have pulmonary fibrosis - support for people with a recent diagnosis
  • A quick guide to understanding pulmonary fibrosis
  • Telling people you have pulmonary fibrosis
  • Pulmonary fibrosis journal
  • About Action for Pulmonary Fibrosis

In the printed version of the pack, the booklets come in a sturdy presentation folder. You can use this folder to keep your hospital appointment letters or other paperwork together.

People who have pulmonary fibrosis

The quickest and easiest way to get a pack is by viewing the digital pack online. We'll send your copy of the pack directly to your inbox so it's yours to keep.

You can also order a printed pack which we'll post to you.

Healthcare professionals

If you're a healthcare professional, send printed packs directly to your patients by referring to APF.

When you refer to us, we’ll contact your patients to offer personalised support. A referral can support you to deliver the best care and get the most from your clinical time. We will:

  • Take non-urgent queries to reduce calls to nurse phone lines.
  • Support people to be confident with self-management and rely less on healthcare professionals.
  • Support access to local services, including hospices, support groups and carer’s assessments.

Learn more about referring to APF.

As the packs are expensive to produce, we aren’t sending out lots of packs to each clinic. We want to make the best use of the money our amazing fundraisers work hard to raise. It also means we can reach even more people who are in need of information and support.

Tell us what you think of the pack on this quick feedback form