Our new peer support service is here to offer you a listening ear, particularly through the challenges of the Covid-19 lockdown and beyond. We may not be able to sit together just now, but it can feel like it.
Our new Peer Support Service is here to support you
Our telephone support ambassadors are trained volunteers who can give a listening ear by phone for anyone with PF, carers and family members over 18.
The volunteers are a mix of people with PF, carers, and former carers. Through their lived experience, they understand how tough life with PF can be, and will be giving a few hours each week to offer peer support by phone.
You can refer yourself or we can receive referrals from health professionals and support groups, with the person’s permission. To request a call let us know by emailing support@APF.org or calling us on 01223 785725.
The scheme began in response to the Covid-19 crisis, to support people with pulmonary fibrosis during this challenging time, particularly through the long periods of isolation that can arise when shielding at home.
The volunteers complement the work of our Specialist Nurse Advisor on the Support Line, who is able to advise on medical matters.
We talked about dogs, the weather, disabled horse riding, Cumbria... just lovely...
Having completed their initial online training, which includes practical aspects of the role, safeguarding and wellbeing, the volunteers will have ongoing peer support, follow-up training and a support supervisor.
The calls include a check that people are getting the support they need and signposting to other services, including PF support groups and our own Support Line, to ensure that people have a good network of support.
I know they will make such a huge difference to many people who they may be in contact with.
Nurse consultant, Dr Karen Heslop-Marshall, who helps to run the training, said: 'I was so impressed to see the enthusiasm of the volunteers. I know they will make such a huge difference to many people who they may be in contact with.’