Managing changes to shielding
From the 1st August 2020 shielding was paused in some parts of the UK. Here trustee Wendy Dickinson and chair of trustees Steve Jones discuss frequently asked questions from pulmonary fibrosis patients, and talk about their personal experience of lockdown in the spring.
This video is based on personal experience and does not aim to give medical advice. It was filmed in July 2020. Always check with your medical consultant before making any lifestyle changes.
Watch our chair Steve Jones, who is living with ipf and has a lung transplant, talk about managing as he self-shields. Filmed in March 2020.
It’s important to keep moving, doing as much as little as feels right for you. Watch our video from Chest physiotherapist, Kim Verry who talks about how to manage and the importance of exercise and movement during the coronavirus.
Watch our video on managing your nutrition during the coronavirus with dietitian Marie Claire:
Marie Claire’s suggested organisations to look into:
- British Dietetic Association, ‘Food facts on healthy eating’
- The British the Lung Foundation ‘Eating for healthy lungs’,
- The British Nutrition Foundation ‘Eating healthy for older people’
- British Dietetic Association, ‘Food facts on food and mood’
- British Dietetic Association, ‘Healthy snacks’
- Royal Society for Occupational Therapists, ‘Staying well when social distancing’
- Malnutrition and losing weight:
- ‘Improving nutrition’
- ‘Nutrition support’
- Unexplained Weight Loss
Digital connection - how to use Zoom
Watch this fantastic video on how to use Zoom from John at St George’s ILD Support Group.
Write to the media
- Research and identify your local & regional media including newspapers, commercial and BBC radio stations and television. Find an email contact for the news desk and email our template press release which you have personalised
- Include a personal story along with the press release.
- Appoint a spokesperson. As well as identifying someone who can give their personal story appoint a spokesperson who can speak about the wider issues. Remember, you don’t have to be an expert. You’re being interviewed because you or your group care about an issue and want to help others.
- Don’t give up! If you don’t get a response immediately don’t be discouraged. Follow up with a phone call. The media are always busy and if you persevere you will most likely succeed.
- Think visually. Newspapers need photos as much as they need words.
- Follow up after Don’t forget to post an update and any photos/footage on social media as well to keep the story going. Online media can be just as effective, if not more so, than traditional media.
- Write a letter to the editor. If you care about an issue but aren’t able to take part actively in this campaign or organise a fundraising event, you could write a letter to the editor of your local newspaper, giving your opinion. Try and keep your letter to about 200 words and focus on the Listen To Our Lungs campaign using our key messages in this pack.