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If you look after a partner, family member or friend with pulmonary fibrosis, we understand the highs and the lows.

You are not alone

There are around seven million people in the UK who care for others. The physical and emotional impact of caring for someone with a serious, life-limiting illness shouldn’t be underestimated.

Carers tell us that they often feel isolated and alone and that they appreciate all the support they get, whether from friends and family or other places.

Never be afraid to ask for help. The NHS has a guide for carers. You can also check out our support and other services available to you as a carer of someone with pulmonary fibrosis.

I found our local support group through the Action for Pulmonary Fibrosis website. Speaking to other family members of people with pulmonary fibrosis was incredibly helpful

Taking care of yourself

It is so important to look after your own physical and mental health: something that is often overlooked. Sharing your worries, eating well, exercising and making time for yourself remain important.

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