Causes of sarcoidosis
What activates the immune system to form granulomas is unknown. In many cases, the inflammation resolves by itself. However, sometimes the inflammation progresses and scar tissue or fibrosis occurs.
The lungs are commonly affected as well as the skin and eyes. It can also affect the liver, heart, nervous system and joints.
When sarcoidosis affects the lungs, you may develop a cough and shortness of breath and other symptoms of pulmonary fibrosis. As sarcoidosis can affect many parts of the body, you may experience a number of other symptoms such as fatigue, sweats, joint pains, skin rashes, red or painful eyes, swollen glands, palpitations, numbness or weakness of face, arms or legs.
Some people do not need treatment for sarcoidosis. It gets better by itself in about 60% of people. Others may be offered immunosuppressive therapies to treat the inflammation, particularly if there is progressive lung disease, heart or neurological involvement.
It is advised to give up smoking.
You will have regular follow-up appointments with your medical team to monitor your sarcoidosis and to discuss whether your treatment needs to change.
There is no cure for pulmonary sarcoidosis, but most people get better after a few years. Some patients find their symptoms continue to get worse, and treatment is required for a long time.
Other forms of pulmonary fibrosis
- COVID-19-related pulmonary fibrosis
- Drug-induced pulmonary fibrosis
- Hypersensitivity pneumonitis
- Idiopathic pulmonary fibrosis
- Rheumatoid arthritis-ILD
- Systemic sclerosis
Sarcoidosis UK have a wide range of high quality patient information about sarcoidosis. All the information has been developed with the help of experts and is free to use.
Join a support group in your area
It’s important to remember that you are not alone. There are now over 75 pulmonary fibrosis support groups around the country.
Support groups meet informally to share experiences, provide expert information and raise funds and awareness. Find a group near you.
Call our support line
APF runs an email and telephone support line offering information and advice about living with PF. Find out more.
Find us on social media
Watch videos of how other people cope day to day with PF.